Links and Resource Information

Myalgic Encephalomyelitis (ME) Links
(cfs:Chronic Fatigue/Immune Dysfunction Syndrome)

Fibromyalgia (FM) Links

Links For Physicians/Researchers

Legal And Disability Advocacy

Related Illnesses


Myalgic Encephalomyelitis (ME) Links
(cfs:Chronic Fatigue/Immune Dysfunction Syndrome)

National ME/FM Action Network: information on conferences, advocacy, research, etc. [Canadian-based], Quest Newsletter Archives.
Information for Canadian children and youth with ME/FM; parent advocacy, Research, resources, Teachers' Sourcebook.
Conference presentations, research abstracts, general ME information.
Free news subscription, research/news updates, resources for doctors
CFIDS Chronicle, medical research articles, etc.
ME research articles, conference presentations, etc.
CFS & FM Information Exchange Forum
About.Com [Type CFS in "Find it Now" box; then click on "GO"]
A wealth of categories, links and information on ME, including ways to deal with [US] law, insurance companies, and welfare (applications can be made to Canadian situations).
Nightingale Foundation research news.
Comprehensive1996 ME/FM Manual edited by Doug Shore.
"I Remember Me" documentary.
Mothers Against ME
"Seabiscuit" a book by Laura Hillenbrand
Wahsington Post review.
Interview with author.
Doctor-Patient Relations.
A number of web articles on how to communicate effectively with your doctor.
http://www.geocities.com/HotSprings/Spa/4225/patient.html
http://chronicfatigue.about.com/library/weekly/aa011200a.htm
http://www.quackwatch.com/02ConsumerProtection/commtips.html
New Jersey Chronic Fatigue Syndrome Association
A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome
http://www.njcfsa.org/Manual.pdf

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Fibromyalgia (FM) Links
National ME/FM Action Network: information on conferences, advocacy, research, etc. [Canadian-based]
Information for Canadian children and youth with ME/FM: parent advocacy, Research, resources, Teachers Sourcebook.
The Arthritis Society. Click on Types of Arthritis; then click on Fibromyalgia (right side bar).
Fibromyalgia Network's website covering FM basics, criteria, coping tips, Web links, newsletter and research archives. Excellent overview.
About.Com [type FM in "Find it Now" box; then click on "GO"] Hundreds of links to sites about support groups, research, etc.
Fibro Hugs Fibromyalgia Support Site. A caring, sensible site with links to resources of all kinds.
FM conference and research studies available.
Latest research articles and news on ME and FM.
www.geocities.com/CapitolHill/1544/
Comprehensive1996 ME/FM Manual edited by Doug Shore
Doctor-Patient Relations.
A number of web articles on how to communicate effectively with your doctor.
http://www.geocities.com/HotSprings/Spa/4225/patient.html
http://chronicfatigue.about.com/library/weekly/aa011200a.htm
http://www.quackwatch.com/02ConsumerProtection/commtips.html

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Links For Physicians/Researchers
ME resources for doctors.
CDC criteria and credible research on potential ME markers.
About.Com [Type CFS or FM in "Find it Now" box; then hit "GO"] Click on "Info for Doctors" in sidebar for numerous links relevant to doctors: diagnosis; children; research; doctors'internet private discussion group; etc.
ME conference abstracts
Fatigue Illness Research: Prof. Garth Nicolson
Research articles into FM, ME/CFS, GWS, and other immune-deficiency syndromes.
2600+ medical research ME &FM references which you can download.
Doctor-Patient Relations.
A number of web articles on how to communicate effectively with your doctor.
http://www.geocities.com/HotSprings/Spa/4225/patient.html
http://chronicfatigue.about.com/library/weekly/aa011200a.htm
http://www.quackwatch.com/02ConsumerProtection/commtips.html
New Jersey Chronic Fatigue Syndrome Association
A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome
http://www.njcfsa.org/Manual.pdf

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Legal And Disability Advocacy
BC Coalition for Persons with Disabilities: get the help you need in fighting your case (BC Disability; CPP; LTD insurers) and getting attendant care; advocacy for housing; health info; etc.
"Qualification for Disability Benefits" by psychologist Donald Schopflocher (argues why ME/CFS should be covered by insurers and government).
BC Superior Courts. Click on "Search the Reasons for Judgement Database", type in words for ME, CFS, FM and names for lawyers, specialists, IME doctors, and your Insurance company to find out what's happening in BC court cases.
Information on BC Disabilities Benefits. Or phone the Ministry's Info Line
1-800-337-3531 to ask for a List of Services available for those people on BC Disability Level 2.
The Tiger's Eye Society. Help in applying for BCD2.
CPP Application Process. A helpful brochure.

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Related Illnesses
Arthritis, various types:
Click on Types of Arthritis; also click on Fibromyalgia (right side bar).
Environmental Illness / Multiple Chemical Sensitivity:
Environmental Illness Society of Canada
Gulf War Syndrome:
Research showing physiological basis for Gulf War Syndrome.
Doctors Guide article on Chronic Fatigue in Gulf War vets.
Microplasmal infection similarities in ME, FM and GWS.
Lyme's Disease:
Comprehensive information, references, & links regards Lyme's Disease.
Lupus: Lupas Canada and information on Lupus.
Multiple Sclerosis:
Multiple Sclerosis Society of Canada
Multiple Sclerosis Society of BC.

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