About our society
Our Society was formed by people with ME and FM hoping to help others. We know and understand the difficulty that people living with ME and FM face, whether it is trying to find supportive and appropriate medical care, dealing with friends and family, or looking for a support group. Living with ME and/or FM is not easy. These conditions can be very disabling and often have a devastating effect on people’s lives. They are often lifelong. Many people are unable to work, enjoy their usual activities, or even look after themselves and their families. While we all await new developments in research and treatment, our goal is to raise awareness of ME and FM, and help patients become informed in order to improve their quality of life.
Thank you for visiting our website.
WHO WE ARE
What is the ME|FM Society of BC?
The ME|FM Society of BC was formed in 2004 following the amalgamation of the Fibromyalgia Society of BC and the ME Society of BC.
We are a not-for-profit organization that was formed by people living with Myalgic Encephalomyelitis* (ME), and/or Fibromyalgia (FM) to help and support other ME and FM sufferers, and carers and families. We are run predominately by the work of volunteers, with one paid part-time Program Manager.
Our Society has helped thousands of people in British Columbia and elsewhere, understand their illnesses and seek and obtain appropriate medical help and treatments to improve their health and quality of life.
Registered charity (BN) #: 893185173RR0001
* Also referred to as ME/CFS, and incorrectly referred to as chronic fatigue syndrome.
What is the Mission of the ME|FM Society of BC?
The purposes of the ME|FM Society of BC are to:
Educate, inform and increase awareness of Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM) by offering information, support and advocacy to members, individuals and their families;
Provide information and education to physicians, other medical professionals and the community at large, to increase public awareness of Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME);
Champion issues impacting the lives of people with ME and FM through community partnerships and advocacy with local, provincial and federal stakeholders and decision-makers;
Build an inclusive organisation which will reasonably accommodate and allow the participation of ME and FM patients, as well as their carers and families, to the extent they are willing and able;
Promote and fundraise for ongoing medical research to encourage early, accurate diagnosis and effective treatments for Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM);
Liaise with other individuals, groups and organizations dealing with similar illnesses.
HOW WE PROVIDE SERVICES
How does the Society fund its activities?
The ME|FM Society of BC finances its activities through membership fees and tax deductible donations. Membership fees represent about 15% of our revenues and without our membership we could not continue our work. The majority of the activities of the Society are undertaken by a small, dedicated group of volunteers. The Society is a registered charity and all donations over $10 are tax receipted.
We rely on donations to support our efforts. We are looking to grow our membership, please encourage others to join and encourage them to donate. We have also received estate donations in the past, so please consider us in leaving your legacy.
Registered BC Charity# 893185173RR0001
Annual Membership in the ME|FM Society of BC is $25 which includes our Newsletter.
BECOME A MEMBER
We are attempting to move all our processes to digital and online to reduce many of our costs and use less paper. If you cannot receive e-mail, we will send you newsletters and membership info via post. Please let us know if you require mail by post.
For more information, contact:
Greater Vancouver: (604) 878-7707 or
BC toll-free: 1-888-353-6322
WHAT WE DO
What specifically does the Society do?
In order to achieve our Mission, the ME|FM Society of BC:
Operates a BC toll free Help and Information phone line for Members and Non-Members calling for help and support.
Maintain a website which provides patients, families and health care professionals with resources and information about ME and FM.
Provides information about ME and/or FM free of charge for anyone newly diagnosed.
Provides contact information for medical specialists who are able to help with the diagnosis and treatment of the health conditions. Unfortunately, this list is very short.
Provides community and support group contacts all across BC for people to access help in their local area
Serves on the Community Advisory Committee of the Complex Chronic Diseases Program at the BC Women’s Hospital in Vancouver.
Collaborates with Patient & Community Partnership for Education at UBC.
Advocates with provincial and federal government and health care decision-makers to improve services and conditions for ME and FM patients.
Offer educational and awareness raising workshops in the community.
Collaborates with other ME and FM national and international organizations.
Has distributed over 2000 copies of the Overviews of the Canadian Consensus Documents for the Diagnosis and Treatment of both ME and FM to Family Practitioners, Rheumatologists and Neurologists across BC
Publishes a semi-annual newsletter
Attends events and promote awareness with the general public, medical professionals and other health providers
Holds an Annual General Meeting providing an opportunity for the ME/FM community to come together and hear guest speakers on trends in diagnosis and treatments
Organizes May Awareness events