ME Resources for Health Care Providers
& Students 

Following are links to useful resources for clinicians:

 

BCGuidelines.ca is the brand name of the clinical practice guidelines and protocols published by the Guidelines and Protocols and Advisory Committee (GPAC). GPAC is a joint committee between the Doctors of BC and the Ministry of Health. Our Society is working with the GPAC and CCDP to develop BC specific guidelines for ME.

 

 

 

 

 

 

 

 

 

 

 

 

Diagnosis and Management of

Myalgic Encephlomyelitis /

Chronic Fatigue Syndrome

Dr. David Kaufman, Internal Medicine physician

at the Center for Complex Diseases Mountain

View, California, and former Medical Director of 

Open Medicine Institute, leads this excellent 

Unrest​.film continuing education video for

health care practitioners. Share with your health care practitioner, family or carer.

 Cautions regarding exercise and ME: 

 

The Workwell Foundation is a research organisation, which focuses on issues concerning the functional aspects of chronic fatigue syndrome/myalgic encephalomyelitis (ME/CFS). Workwell developed the groundbreaking 2-Day cardiopulmonary exercise testing (CPET), which has been used to identify and study the unique symptom of post exertional malaise (PEM) in ME patients. 

 

This important letter from the Workwell Foundation cautions about exercise for ME patients, and includes citations to relevant studies:  ME/CFS GET Letter to Health Care Providers

  It’s All About ME:
Creating Awareness for Dental Hygienists about Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome  
by Alma Pauw, RDH, PID, BHSc • almapauw@gmail.com
 

 

Alma Pauw is a British Columbia based former dental hygienist who lives with ME. 

In this article, published in Oh Canada! Oral Health Canada Magazine, Alma has 

created an excellent ME educational resource for Oral Hygienists and Dentists. This

is an absolute "must take" for your next dental appointment!

Alma Pauw.jpg
 

The Real Story about Chronic Fatigue Syndrome

By Eric Ries | September 2017

"Research shows that the condition, once ridiculed as imaginary, is a true physiological disease. Here's what to look for, and how PTs are helping those who have it."

 

ME Conferences

Upcoming ME Conferences

ME Conferences Reports

 
What happens when you have a disease doctor's can't diagnose:​ Jennifer Brea is a US-based speaker, activist and co-founder of #MEACTION and Sundance award-winning filmmaker of "UNREST". She also has ME.  ​"In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat." [YouTube]

Unrest: Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head,” she turns her camera on herself and her community as she looks for answers and fights for a cure.

This award-winning film is changing the way the world sees ME. 

Unrest review – powerful documentary about chronic fatigue syndrome - Guardian

To watch film: Unrest

What happens when you have a disease doctor's can't diagnose:​ Jennifer Brea is a US-based speaker, activist and co-founder of #MEACTION and Sundance award-winning filmmaker of "UNREST". She also has ME.  ​"In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat." [YouTube]

Forgotten Plague: Ryan Prior’s life imploded October 22, 2006 when he was struck down by a disease that dozens of doctors were powerless to diagnose, let alone treat. Forgotten Plague is his journey into the hidden world of myalgic encephalomyelitis (chronic fatigue syndrome). It is a chilling tale of our medical system’s failures in addressing many chronic, complex diseases. Yet it is also a riveting story of science’s remarkable ability to transform medicine and improve human life itself.

Ryan is a Stanford MedX ePatient Scholar and a reporter for CNN.

Forgotten Plague: A Must See Documentary - Huffington Post

To watch film: Forgotten Plague

#TimeForUnrest

 

With the goal of raising awareness and knowledge of ME among the next generation of health care practitioners, the Society is committed to screening Jennifer Brea's feature documentary, Unrest, to as many British Columbia Medical and Health Sciences students as we can.

If you would like to join us, send us an email.

To learn more about the world wide campaign, go to #TimeForUnrest.

Mailing Address

Box 462, 916 West Broadway Ave.

Vancouver, BC V5Z 1K7

Call

T: 604-878-7707 or
BC Toll-free: 1-888-353-6322

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COPYRIGHT © 2016 MYALGIC ENCEPHALOMYELITIS & FIBROMYALGIA SOCIETY OF BRITISH COLUMBIA