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Healthcare provider education:

ME Symptom management & referral

ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS 
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The guidebook can be viewed online, downloaded, or printed – in color or black and white.

 

Designed for patients, allies supporting patients and for medical providers, this guidebook aims to help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met. It offers guidance in carrying out everyday living activities that support energy conservation with ME/CFS. 

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Surgical considerations for ME patients

Dental procedures

Anecdotally, many with ME are sensitive to epinephrine in dental freezing, causing reactions and occasionally, relapses.

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Provincial referral support* 

Complex Chronic Disease Program (BC Women’s and Children’s Hospital, Vancouver)
 

*Please consider waitlists are lengthy for patients to be seen. Physician to physician consultations may be available to support family physicians.

The CCDP also publishes a Community and Financial Resources in BC Guide (updated June 2022).

Other considerations

Specialist referrals for co-morbities

 

  • POTS/Orthostatic Intolerance  

  • Mast Cell Activation Syndrome (MCAS)

  • Gastrointestinal symptoms, IBS

Referrals for in-home visits

 

  • OT home assessment/support

  • In-home lab services

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