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Myalgic Encephalomyelitis Treatments
About ME                ME signs and symptoms         Pacing resources               ME and long COVID resources

Introduction

 

There is, as yet, no cure or universal treatment for ME; there is only individual treatment for specific symptoms. However, there are some steps that you can take which may help:

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  • Aggressive rest, especially in the early stages and during relapses, is the one therapy universally agreed upon as key in the management of ME;

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  • Pacing, which means staying within your ‘energy envelope’ by managing your activities as best you can to avoid the push-crash cycle of relapsing symptoms;

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  • A healthy diet seems to help some patients. Since some people develop food sensitivities, it may be helpful to experiment with diet to discover which are better tolerated and which should be avoided;

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  • Work with your medical professional to obtain appropriate medical support for sleep disturbances, unmanageable pain, reactive depression, any nutritional and hormonal deficiencies, and/or to assist you with lifestyle changes needed to manage a chronic illness;

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  • Above all, when you are feeling a bit better, avoid the temptation to catch up with unfinished tasks as this is likely to cause a relapse. Slowly build up your activity levels gradually and listen to your body when it tells you to rest. It is crucial to recognize your limits and not push beyond them.

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Tools for ME Management

 

  • Pacing Resources: We have reviewed and collected available Pacing resources, guides and tools

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  • ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS. The guidebook can be viewed online, downloaded, or printed in colour or in black and white.

 

This guidebook is designed for patients, for those allies supporting patients, and for medical providers. It aims to help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met.  It offers guidance in carrying out everyday living activities that support energy conservation with ME/CFS. The tools provided are divided into chapters, to be used individually or the guidebook as a whole. 

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