After Unrest: a toolbox for ME practitioners, patients and families



AFTER UNREST is a short documentary about Myalgic Encephalomyelitis (also known as ME/CFS or chronic fatigue syndrome) created by Australian ME patient, Ketra Wooding. From her bed, Ketra has created an incredibly valuable ME resource that can be used by health care practitioners, patients and families.

This documentary tells Ketra’s story, and includes talks by health care professionals that have helped Ketra with her illness. It touches on current research and also features Australian patients, their stories and perspectives on this all too common disease. It provides a toolbox of information to help practitioners, patients and families alike.

I've been living in Aged care for the last 5 years - a situation that is totally

inappropriate for a 33 year old ME/CFS patient. So I made a video,

After Unrest, which covers what I wish I'd known when I first got diagnosed

with ME/CFS. It features the health professionals that have been crucial

to keeping me alive, along with cutting edge research from the

NCNED* at Griffith University.

Ketra Wooding

Contents:

Introduction Ketra's story - 01:54

Health Professionals: 6:57

01- What do many doctors think when they see patients with Myalgic Encephalomyelitis, also known as ME/CFS or Chronic Fatigue Syndrome? 07:13

02- How is ME/CFS diagnosed? 07:33

03- How can General Practitioners help ME/CFS patients? 07:55

04- Are there any tests that can be done to aid a diagnosis? 08:36

05- Can exercise intolerance be measured? Many ME/CFS patients find exercise makes them worse. 10:36

06- How can heart rate monitors and pacing help ME/CFS patients? 13:03

07- Can ME/CFS patients benefit from exercise? 14:26

08- What does post exertional malaise (crash/payback) look like? 15:50

09- Are there any blood tests or biomarkers for ME/CFS? 16:54

10- What do NCNED researchers understand about ME/CFS pathomechanisms? 17:26

11- Could faulty ion channel receptors cause the pain in ME/CFS? 19:06

12- What does NCNED research say about treatments? 20:14

13- Is there any role for psychology in ME/CFS? 21:13

14- When even food triggers your symptoms, what can you eat? 22:04

15- What does research say about allergies, intolerances and sensitivities? 22:51

16- Are sufficient funds directed towards ME/CFS from the Australian medical research council? 23:32

Australian patients & their needs 24:10

Key Points 25:46

Resources 25:54

Dedication 25:59

Credits 26:06

For more info: https://m.facebook.com/mecfshealthpage

Resources:

- Getting Started with Heart Rate Monitoring

- Printable Brochures featuring health professionals, key points and CPET testing

- References

*NCNED: National Centre For Neuroimmunology and Emerging Diseases

#HealthCareProfessionals #mecfs #GET #patientcare #MEResources

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