The ME│FM Society of BC, in partnership with the BC Women’s Hospital + Health Centre and Complex Chronic Diseases Program (CCDP), a program of the Provincial Health Services Authority, has received a grant from the Vancouver Foundation to support a community engagement project that will begin to examine the unmet needs of British Columbians living with Myalgic Encephalomyelitis (ME).
This project has two opportunities to participate:
First, we will be conducting interviews with 6 ME patients across BC.
Second, we will gather 20-25 participants (patients, practitioners and other stakeholders) for a day-long event in Vancouver.
With this notice we are currently looking for 6 interview participants.
Participants must be over 18 years of age, live in BC, and have a diagnosis of chronic fatigue syndrome or ME from a doctor.
Interviews will be about 60 minutes long and can be done in person, if possible, at your choice of location or via Skype/phone.
A caregiver who supports you can also be present.
It is expected that interviews will be held between March 15- 21st.
We require a range of participants to represent geographical locations, age, gender and illness severity.
If you are interested in participating, we ask you to complete this short 11 question survey to help us select participants. We will be contacting possible participants within a week of this announcement on a first come first serve basis within the criteria parameters. Information collected in this survey will not be used for any purposes beyond recruiting for this project unless you give express permission.
Thank you for taking the time to consider this opportunity for ME patient engagement. If you have any questions contact:
Research Coordinator, Lana LeBlanc, at firstname.lastname@example.org, or
Project Lead, Hilary Robertson, at email@example.com
Thank you for your consideration.