Updated: May 14, 2019
WHEN: Wednesday, 15 May, 11:30-2pm
RSVP: There are two ways to RSVP:
On May 15 the ME/FM Society of BC, Millions Missing Canada and ME Victoria Association are partnering to create the first British Columbia Millions Missing live event. British Columbians will add our voices to the international MillionsMissing Campaign, joining with people from around the world living with ME (myalgic encephalomyelitis), along with their friends and families, ME advocates, clinicians and researchers, to demand that ME patients no longer be stigmatised, marginalised, harmed or ignored.
This year we are taking to the steps and front lawn of the British Columbia legislature in Victoria to raise awareness of ME among British Columbia parliamentarians, demanding that provincial and federal governments and authorities help us #ChangeTheFuture4ME.
Our Society's Unmet Needs committee has published a Backgrounder which we delivered to the BC Ministry of Health in December 2018: "The unmet health care needs of British Columbians living with MYALGIC ENCEPHALOMYELITIS (ME)"
We are demanding that the BC PROVINCIAL GOVERNMENT and the BC MINISTRY OF HEALTH address the dire unmet needs of the over 70,000 British Columbians living with ME.
We are demanding equitable health care for ME patients in BC; that the Ministry of Health honour its commitment outlined by the Minister of Health, Hon. Adrian Dix, under the budget statement in his published Service Plan of February 2019:
“The Ministry of Health has overall responsibility for ensuring that
quality, appropriate, cost-effective and timely health services are
available for ALL British Columbians.”
As anyone living with ME in this province can attest, the Ministry is failing to provide this level of care and service to British Columbians living with ME.
We are demanding that:
BC Ministry of Health issue a public statement to the health sector about ME, such as the New York State Department of Health letter to New York physicians
BC Ministry of Health publicly commit to equitable, appropriate and respectful health services for ME patients, including access to ME specialists and knowledgeable health care practitioners, access to relevant diagnostics, access to treatments, and acceptable waiting lists.
BC Ministry of Health provide current knowledge and ME guidelines for diagnosis and treatment to the health sector, including:
a. Work with patient advocates and ME experts to update the Health Link BC website, to include the Canadian Consensus Criteria, and, in particular, to include a caution to health care professionals against recommending exercise to ME patients.
b. Direct all health authorities and BC Center for Disease Control to include ME as a complex chronic disease.
c. Create provincial emergency and hospital protocols and implementation plan for ME.
BC Ministry of Health prioritise the implementation of diagnostic and billing codes for ME.
BC Ministry of Health review home care eligibility requirements to ensure inclusion of ME patients.
BC Ministry of Social Development and Poverty Reduction recognise ME as a serious and complex neruoimmune disease requiring support, and remove unreasonable barriers to income assistance for ME patients.
BC Government and Ministry of Health provide financial support for patient organisations.
BC Government seek agreement on next steps for both action and ongoing consultation with patients and decision-making stakeholders to address the plight of British Columbians living with ME.
We demand that the FEDERAL MINISTER OF HEALTH, GINETTE PETITPAS TAYLOR:
Meet with stakeholders from the ME community to begin to understand the illness and implement a meaningful plan of action for ME sufferers.
Issue a public statement acknowledging that ME is a serious neuroimmune illness along with a commitment to partner with the community to seek solutions, much as their counterparts at the CIHR have done.
Release dedicated funding for ME to fund research, while also increasing access to appropriate testing and treatments.
Watch Millions Missing Canada's Scott Simpson address the Federal Minister of Health, Ginetter Petitpas Taylor, at a Town Hall meeting in Toronto, organised by MP Rob Oliphant:
COME JOIN US!
Join our FB group to volunteer to help with the event and for updates: Millions Missing Connect British Columbia
Register for the event on our Facebook event, or email us at: email@example.com
Bring your chair, bring your signs and story, bring your friends and family, and let BC MLAs know we want action!
In fact, write to your MLA, and let the know you want to see them at our event in Victoria, speaking with their ME constituents, listening to our stories, learning about ME, and signing our guest book!
Stop the harm! Start the treatment! Fund the research!