ME Resources

Updated: Sep 30, 2019




ME Victoria Association (MEVA)

PO Box 50032, RPO Fairfield Plaza, Victoria BC V8S 5L8

Phone: 250-384-4783

E-mail: me.victoria@shaw.ca

To create and promote greater awareness and understanding of ME/CFS among the medical community and general public. To advocate for improved diagnostic, treatment and support services at the local, provincial and national level. To organize and liaise with other ME/CFS support groups

www.mevictoria.ca


The Myalgic Encephalomyelitis Association of Ontario

P.O. Box 84522, 2336 Bloor St. W., Toronto, ONT M6S 4Z7

Phone: 416-222-8820

E-mail: meao-cfs@sympatico.ca

Provides newsletter and information on ME, including support group listings and referrals to doctors and attorneys.

https://www.meao.ca

The National CFIDS Foundation

103 Aletha Rd., Needham, MA 02492

Phone: 781-449-3535

E-mail: info@ncf-net.org

The second largest ME organization in the US, whose goals are to fund CFID-related medical research and provide information, education and support to those with CFIDS and related illnesses. Members receive a quarterly newsletter, The National Forum. www.ncf-net.org


Nightingale Research Foundation

Contact: Dr. Byron Hyde

121 Iona Street, Ottawa, ON K1Y 3M1

E-mail: office@nightingale.ca

Publishes pamphlets, books and research on ME.

www.nightingale.ca


The CFIDS Association of America

P.O. Box 220398, Charlotte, NC 28222-0398

Phone toll free: 800-442-3437 // Resource line: 704-365-2343

E-mail: cfids@cfids.org

Wealth of information dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS). Quarterly newsletter (CFIDS Chronicle) and research news (CFIDS Research Review). E-Newsletter (CFIDSLink) is available free of charge.

www.cfids.org


Myalgic Encephalomyelitis Society of America

P.O. Box 44402., Shreveport, LA 71134

E-mail: MESocofAmerica@yahoo.com

The ME Society of America is a research, information and advocacy group seeking to promote understanding of ME. Provides advocacy alerts, and research reviews as they arise.

https://ammes.org



Action for ME - Britain
A free online resource about myalgic encephalomyelitis (ME). We are providing information, advice and support to individuals suffering from the condition as well as to their family members and loved ones

www.afme.org.uk

Health Rising

After starting the Phoenix Rising website, Cort Johnson moved on to start his Health Rising blog, an excellent resource containing concise, in-depth articles explaining the latest research along with forums, interviews, conference tweets and all things relevant to finding a cause and cure for ME/CFS and FM.

https://www.healthrising.org/

https://twitter.com/CortJohnson


M.E. Society of Edmonton (CFS)

PO Box 68168, 162 Bonnie Doon Shopping Centre, Edmonton, AB T6C 4N6

Phone: 780-944-0809

Email: info@mesocietyofedmonton.ab.ca

Charitable organization founded in 1991 with a vision to promote an understanding of the diseases Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS).  Operated by a volunteer Board, the Society educates medical and legal professionals, advocates for better treatment and services for those with ME and/or CFS and supports patients, families and caregivers.

http://www.mesocietyedmonton.org

ME/CFS Society (SA) Inc.

G.P.O. Box 383, Adelaide, South Australia 5001

Phone: (08) 8410 8929

E-mail: sacfs@sacfs.asn.au

he Association's goal is to assist and support those with ME/CFS. Part of that extends to assisting family members, spouses and friends understand the illness as well as create awareness and understanding of the illness to our community, including the medical fraternity. Membership includes quarterly magazine, Talking Point.

www.sacfs.asn.au


Million Missing International

An organization dedicated to the advocacy of ME world-wide. They organize yearly

https://millionsmissing.meaction.net


Million Missing Canada

Organization advocating for funding for ME research and accessible treatment in

Canada.

https://www.millionsmissingcanada.ca


Medscape

This site aimed at physicians can also be followed by patients. Sign up for emails on ME/CFS, FM and other medical topics. www.medscape.com


Whittemore Peterson Institute

6600 N Wingfield Pkwy, Sparks, NV 89436 Phone: 775-348-2335 Email: info@wpinstitute.org

The Whittemore Peterson Institute (WPI) is a not for profit center dedicated to the support of those with a spectrum of neuro-immune diseases (NIDs) including: myalgic encephalomyelitis, (ME), fibromyalgia, and similar complex chronic diseases of the immune system and the brain.

www.wpinstitute.org


Science for ME

Science for ME is an independent, patient-led, international forum for people with ME/ CFS and the carers, clinicians, scientists and advocates who support us. It is a break away forum from Phoenix Rising. www.s4me.info


ME Research Review

A blog run by Simon McGrath, an ME sufferer with a biochemistry degree, dedicated to reviewing ME/CFS research and explaining the biomedical findings. You can sign up by e-mail to receive notifications of when new articles are

www.mecfsresearchreview.me


ME-CFS Knowledge Center

Provides basic information and resources on ME and CFS from leading authorities around the world. www.cfsknowledgecenter.com


ME-CFS Community

A member-supported creation of ME-CFS Knowledge Center, Inc. Members come from many countries to learn from and communicate directly with others who are afflicted with ME/CFS. http://me-cfscommunity.com/


International Association of Chronic Fatigue Syndrome/Myalgic Encephalolmyelitis (IACFS/ME) Contains a wealth of information on CFS, ME and FM research, patient care and treatment as well as information on scientific conferences. http://iacfsme.org


Surviving Severe ME

A website created by Claire Wade, a former severe ME patient. The site offers practical

doing activities from bed and suggestions of devices that can make life easier while

severely ill.

https://www.survivingsevereme.com


Dr. Nacul (2019) Presentation: Has Me/CFS research helped clinicians and patients? Can we do better?

https://youtu.be/kupG4a5vJdM


Sicksplaining by Sabrina Poirier

https://www.facebook.com/Sicksplaining/

https://m.youtube.com/watch?v=cZNNf1VHjVA&noapp=1&client=mv-google

Medical Errors Interviews podcast by Scott Simpson

https://medicalerrorinterviews.podbean.com/



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