Other Resources

Updated: Jul 20, 2019




Multiple Sclerosis Society of Canada - BC Division

CPP Disability Claims

The MS Society of BC has compiled an extensive brochure on Canada Pension Plan disability information covering: eligibility criteria; the application package; the appeals process; sample letters and support documents. Download it from the site or call them.

Resource Disability Benefits Manual

Everything from travel deals to ICBC discounts.

1501-4330 Kingsway, Burnaby, British Columbia V5H 4G7

Phone: 604-689-3144 //BC Toll Free: 1-800-268-7582

E-mail: info.bc@mssociety.ca // www.mssociety.ca/bc



St. Paul’s Anglican Church

Advocates: CPP & other Disability claims.

1130 Jervis St., Vancouver, BC

Phone: 604-685-6832

Advocacy Office: 604-683-4287



MEFM Advocacy

Provides information, support and advocacy to people with ME and FM. Help with insurance claims, Canada Pension Plan and BC Disability Benefit applications.

Contact the MEFM Society for a referral:

Phone: 604-878-7707

E-mail: info@mefm.bc.ca



Disability Alliance BC (DABC)

Provides advocacy and help with PWD Application. Updates and Help Sheets available on their website regarding BC disability coverage. Also provides assistance with Canada Pension Plan Disability benefits appeals, tribunals and Pension Appeals Board cases if you are a Ministry of Human Resources client. $10 annual membership includes Transition magazine.

204-456 West Broadway, Vancouver BC V5Y 1R3

P: 604 875-0188

feedback@disabilityalliancebc.org // www.disabilityalliancebc.org

Twitter: https://twitter.com/DisabAllianceBC // Facebook: www.facebook.com/DisabilityAllianceBC/



The Arthritis Society of Canada

Lending library with reviews of FM books and videos, program and course schedules and information packages.

BC and Yukon Division: www.arthritis.ca/bc



St. Mark’s Anglican Church

Advocates with BC disability benefits claims.

1805 Larch St., Vancouver, BC

Phone: 604-736-2838

Ecological Health Alliance

Box 30033, Saanich Centre PO, Victoria, BC V8X 5E1

Phone: 250-658-2027

Ecological Health Alliance / Allergy and Environmental Health Association - BC Branch

Resources and help for those with food and chemical sensitivities and provides a newsletter for members.

Email: info@ehabc.org // www.ehabc.org



Dr. Eleanor Stein

Psychiatrist in private practice in Calgary, Alberta specializing in treating ME/CFS, FM and Multiple Chemical Sensitivities.

Phone: 403-287-9941

Email: espc@shaw.ca

Vancouver Women’s Health Collective

225 – 199 West Pender Street, Vancouver, British Columbia V6B 1S5

Health Information Line: 604-736-5262

VWHC advocates for appropriate, quality health care for women, provides help and support to women facing heath crises, operates a Health Practitioner and Therapist Directory to help women find a health care provider specific to their needs and publishes a quaterly newsletter Her Voice providing information and resources for women’s health.

Email: vwhc@vcn.bc.ca // www.womenshealthcollective.ca



The Canadian Disabled Individuals Association “CDIA”

600-890 West Pender St., Vancouver, BC V6C 1J9

Phone: 604-677-6565

www.disabledindividuals.ca



Fibromyalgia Wellspring Foundation

Phone Toll Free: 1-800-567-8998 // Phone: 778-278-3697

Email: info@fibromyalgiawellspringfoundation.org

www.fibromyalgiawellspringfoundation.org


SPARC BC – Disabled Parking Permit Application

201-221 East 10th Avenue

Vancouver, BC V5T 4V3

Email: permits@sparc.bc.ca // www.sparc.bc.ca


SOLVE ME/CFS WEBINARS: https://solvecfs.org/solve-mecfs-initiative-webinars/


Books and Videos

You can find books about FM and ME at your local library or bookstore. The local office of The Arthritis Society at The Mary Pack Arthritis Centre (895 West 10th Avenue, Vancouver, BC) has a learning centre (main floor) and lending library with some books and videos on FM and ME. Phone 604-875-5002.


Below is a list of some informative books and videos that are available on ME and/or FM.


A Girl Behind Dark Glasses

Jessica Taylor-Bearman, Hashtag Press, 2018. ISBN 9781999805357

This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight


Understanding Post-Traumatic Fibromyalgia

Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 1996. ISBN 0-9646891-8-9


Inside Fibromyalgia

Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 2001. ISBN 1-890018-36-8 (See below)


Fibromyalgia for Dummies

Roland Straud 2002. John Wiley & Sons Canada. ISBN: 0764554417


The Fibromyalgia Supporter

Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 1997. ISBN 1-890018-11-2

You can order any of the three books by Mark J. Pellegrino from Anadem Publishing, Inc. // Phone: 1-800-633-0055 www.anadem.com


Coping With Fibromyalgia Beth Ediger, Toronto, ON, LRH Publications, 1991.


The Fibromyalgia Advocate: Getting the Support You Need to Cope with Fibromyalgia and Myofascial Pain Syndrome

Devin J. Starlanyl, M.D., 1998. ISBN 1-57224-121-7



Fibromyalgia & Chronic Myofascial Pain Syndrome: A Survival Manual (Second Edition)

Devin Starlanyl and Mary Ellen Copeland, 2001. ISBN: 1-57224-238-8



Treating Fibromyalgia

Beth Ediger, Fredericton, NB, LRH Publications, 1997.

These two booklets by Beth Ediger are no longer in print, but can sometimes be found.


All About Fibromyalgia, An Essential Guide for Patients and Their Families

Daniel J. Wallace, M.D., and Janice Brock Wallace. Oxford University Press, 2003. ISBN: 0195149319



The Fibromyalgia Help Book: Practical Guide to Living Better with Fibromyalgia

Jenny Fransen, R.N. and I. Jon Russell, M.D., Ph.D. Smith House Press, 1996. ISBN: 0-9615221-4-3


The Fibromyalgia Syndrome: A Clinical Case Working Definition for Practitioners

I. John Russell, MD, PhD Editor. Co-published as Journal of Musculoskeletal Pain Vol. 11, Number 4, 2003. The Haworth Medical Press. ISBN: 0-7890-2574-4

www.HaworthPress.com



From Fatigued to Fantastic

Jacob Teitelbaum, M.D., 2001. ISBN 1-58333-097-6 Treatment program for CFS and FM.



Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols

Originally published Journal of Chronic Fatigue Syndrome Vol. 11, Number 1, 2003. The Haworth Medical Press. ISBN: 0-7890-2207-9

www.HaworthPress.com



Fibromyalgia and Muscle Pain: Your Self-Treatment guide

Leon Chaitow, Thorsons Publishers, 3rd edition, 2001. ISBN: 0007115024


Fibromyalgia: Simple Relief Through Movement

Stacie L. Bigelow, MA, John Wesley & Sons, Inc., New York, NY, 2000. ISBN: 0471348023


Chronic Fatigue Syndrome, Fibromyalgia and Other Invisible Illnesses: The Comprehensive Guide

Katrina Berne, 2002. ISBN 0-89793-280-3



Tired or Toxic? A Blueprint for Health

Sherry Rogers, M.D., 1990. ISBN 0-9618821-2-3

The first in a series of books by this environmental medicine specialist. Order from Prestige Publishing:

Phone: 1-800-846-6687

www.prestigepublishing.com



The Doctor’s Guide to Chronic Fatigue Syndrome – Understanding, Treating and Living with CFIDS

David S. Bell, M.D., 1995. Perseus Publishing. ISBN 0-201-62616-0



Alternative Medicine Guide to Chronic Fatigue, Fibromyalgia and Environmental Illness

Burton Goldberg, 1998. ISBN: 1-887299-11-4.


TMJ: Its Many Faces–Diagnosis of TMJ and Related Disorders, 2nd Edition

Wesley Shankland II, D.D.S., M.S., Ph.D., 1998. ISBN 1-890018-23-6

Order from Anadem Publishing, Inc.:

Phone: 1-800-633-0055

www.anadem.com


Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia

Dr. Alison Bested 2006. Cumberland House. ISBN: 1-5818246-5-3



The CFIDS and Fibromyalgia Self-Help Book (New Edition)

Dr. Bruce Campbell 2004. CSH Press, Palo Alto CA. ISBN: 0-9705267-1-7

This new edition is available for purchase for US$10.95 plus US$10 postage from:

Dr. Bruce Campbell

CFIDS Self-Help Program

777 San Antonio Road, #121

Palo Alto, CA 94330-4856

Alternatively, it can be ordered on-line at:

www.cfidsselfhelp.org. You can contact Dr. Campbell himself via email at:

bruce.campbell@flash.net



Living Well With Chronic Fatigue Syndrome and Fibromyalgia

Mary J. Shomon 2004. HarperCollins Publishers Inc. ISBN: 0-06-052125-2

www.thyroid-info.com www.cfsfibromyalgia.com


You Don’t LOOK Sick – Living Well with Invisible Chronic Illness

Joy H. Selak & Steven S. Overman, MD, MPH 2005. The Haworth Medical Press. ISBN: 0-7890-2449-7


Auto Accident Survivor’s Guide for British Columbia

Jill Franklin 2005. ISBN: 0-9736611-0-0

Available at local bookstores throughout BC. Call 1-800-667-3848 for the closest store. Order online at:

https://www.cpsbc.ca/node/6011



Fibromyalgia & Chronic Fatigue Syndrome – 7 Proven Steps to Less Pain & More Energy

Fred Friedberg, Ph.D. New Harbinger Publications Inc. 2006. ISBN 978-1-57224-459-7



In Praise of Slow – How a Worldwide Movement is Challenging the Cult of Speed

Carl Honore 2004. Random House of Canada. ISBN: 0-676-97572-0


Forget Perfect

Lisa Earle McLeod with JoAnn Swan Neely. Berkley Trade 2001. ISBN – 10: 039952715X; ISBN – 13: 9780399527159.



I Remember Me Video

Kim Snyder. The first nationally released film on ME.

You can purchase this film from:

Zeitgeist Films (in the USA)

Phone: 1-800-509-0448.

www.zeitgeistfilms.com or www.amazon.ca


Diagnosing and Treating Chronic Fatigue Syndrome

Dr. Sarah Myhill, January 2009, 26th edition. E-book available online at www.drmyhill.co.uk/cfs_book.pdf


Breaking Thru the Fibro Fog: Scientific Proof Fibromyalgia is Real *

Kenneth P. White, M.D. PhD. 2010. Wortley Road Books. Forward by Dr. Fred Friedberg PhD. Available online at www.wortleyroadbooks.com; currently on sale at $10 off the list price of $32.95 (15% of all proceeds are being donated to the American Fibromyalgia Syndrome Association to fund FM research).


Unrest

Award-winning, Oscar-nominated Documentary on ME produced and directed by

Jennifer Brea that follows the lives and realities of Severe ME patients.

https://www.unrest.film/watch

Can be purchased on itunes https://itunes.apple.com/ca/movie/unrest/id1265409535?

mt=6&ign-mpt=uo%3D4

Can be purchased on Vimeo on demand https://vimeo.com/ondemand/unrest


Forgotten Plague

Documentary produced by Ryan Prior, a journalist living with ME. Links to watch the film

on the website. http://www.forgottenplague.com


Organizations


MEFM Society of BC

MEFM Myalgic Encephalomyelitis and Fibromyalgia Society of BC

Box 462 – 916 West Broadway, Vancouver, BC, V5Z 1K7

Phone: 604-878-7707 // BC toll free: 1-888-353-6322

E-mail: info@mefm.bc.ca

www.mefm.bc.ca

Annual membership $25.00.


FM-CFS Canada

FM-CFS Canada, 310-1500 Bank Street Ottawa, Ontario K1H 1B8

Phone toll free: 1-877-437-HOPE (4673)

E-mail: office@fm-cfs.ca // Website: http://fm-cfs.ca


National ME/FM Action Network

512 – 33 Banner Road, Nepean, ON K2H 8V7

Phone: 1-613-829-6667 // E-mail: ag922@ncf.ca

Annual membership $25.00 includes Quest quarterly newsletter.

Available for purchase: The Canada Pension Plan Disability Benefits Guidelines, $7.00

Legal Disability Manual, $60.00 (includes CPP Disability Benefits Guidelines

www.mefmaction.net


Informative Websites

Legal Information Websites

For court decisions in BC, search on:

www.courts.gov.bc.ca


CFS Research

This site provides free access to scientific articles on ME/CFS that have recently appeared in well-known medical journals.

www.cfsresearch.org

“Chronic Fatigue Unmasked”

Dr. Gerald E. Poesnecker’s website contains extensive excerpts from his book, Chronic Fatigue Unmasked 2000.

https://www.amazon.com/Chronic-Fatigue-Unmasked-G-Poesnecker/dp/0916285618


A website run by a for-profit company that sells nutritional supplements, provides a wealth of CFS/FM resources, with a focus on research and treatment news. You can subscribe to an online newsletter.

www.immunesupport.com

www.fibromyalgiasupport.com



Invisible Disabilities Association of Canada

For people with CFS, FM, environmental sensitivities and other disabilities.

http://www.disabilityliving.ca/disability-canada-invisible-disabilities-association-resources/


Chronic Fatigue Syndrome & Fibromyalgia Information Exchange Forum (Co-Cure)

An extensive website with a variety of CFS/FM information. You can subscribe to its online mailing list.

www.co-cure.org


World Health Online

A for-profit website that offers information on a variety of conditions (including CFS/FM), with a focus on alternative medicine.

www.healthy.net


Web MD Message Board

Kim Jones, RN., Ph.D., F.N.P. of Portland, OR, responds to questions about new therapies for ME/FM.


FM-CFS Canada - Compassion in Action

John Ernst is the executive director for FM-CFS Canada in Ottawa, Ontario.

E-mail: office@fm-cfs.ca // www.fm-cfs.ca


Fibromyalgia

www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm


Canadian Lyme Disease Foundation

www.canlyme.com


#Resources #FMResources #MEResources #FM #ME #Fibromyalgia #MyalgicEncephalomyelitis #MECFS #support #SupportGroups #patientsupport

Mailing Address

PO BOX 46879 STN D

Vancouver, BC   V6J 5M4

Call

T: 604-878-7707 or
BC Toll-free: 1-888-353-6322

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