Updated: Jul 20, 2019
Multiple Sclerosis Society of Canada - BC Division
CPP Disability Claims
The MS Society of BC has compiled an extensive brochure on Canada Pension Plan disability information covering: eligibility criteria; the application package; the appeals process; sample letters and support documents. Download it from the site or call them.
Resource Disability Benefits Manual
Everything from travel deals to ICBC discounts.
1501-4330 Kingsway, Burnaby, British Columbia V5H 4G7
Phone: 604-689-3144 //BC Toll Free: 1-800-268-7582
St. Paul’s Anglican Church
Advocates: CPP & other Disability claims.
1130 Jervis St., Vancouver, BC
Advocacy Office: 604-683-4287
Provides information, support and advocacy to people with ME and FM. Help with insurance claims, Canada Pension Plan and BC Disability Benefit applications.
Contact the MEFM Society for a referral:
Disability Alliance BC (DABC)
Provides advocacy and help with PWD Application. Updates and Help Sheets available on their website regarding BC disability coverage. Also provides assistance with Canada Pension Plan Disability benefits appeals, tribunals and Pension Appeals Board cases if you are a Ministry of Human Resources client. $10 annual membership includes Transition magazine.
204-456 West Broadway, Vancouver BC V5Y 1R3
P: 604 875-0188
The Arthritis Society of Canada
Lending library with reviews of FM books and videos, program and course schedules and information packages.
BC and Yukon Division: www.arthritis.ca/bc
St. Mark’s Anglican Church
Advocates with BC disability benefits claims.
1805 Larch St., Vancouver, BC
Ecological Health Alliance
Box 30033, Saanich Centre PO, Victoria, BC V8X 5E1
Ecological Health Alliance / Allergy and Environmental Health Association - BC Branch
Resources and help for those with food and chemical sensitivities and provides a newsletter for members.
Dr. Eleanor Stein
Psychiatrist in private practice in Calgary, Alberta specializing in treating ME/CFS, FM and Multiple Chemical Sensitivities.
Vancouver Women’s Health Collective
225 – 199 West Pender Street, Vancouver, British Columbia V6B 1S5
Health Information Line: 604-736-5262
VWHC advocates for appropriate, quality health care for women, provides help and support to women facing heath crises, operates a Health Practitioner and Therapist Directory to help women find a health care provider specific to their needs and publishes a quaterly newsletter Her Voice providing information and resources for women’s health.
The Canadian Disabled Individuals Association “CDIA”
600-890 West Pender St., Vancouver, BC V6C 1J9
Fibromyalgia Wellspring Foundation
Phone Toll Free: 1-800-567-8998 // Phone: 778-278-3697
SPARC BC – Disabled Parking Permit Application
201-221 East 10th Avenue
Vancouver, BC V5T 4V3
SOLVE ME/CFS WEBINARS: https://solvecfs.org/solve-mecfs-initiative-webinars/
Books and Videos
You can find books about FM and ME at your local library or bookstore. The local office of The Arthritis Society at The Mary Pack Arthritis Centre (895 West 10th Avenue, Vancouver, BC) has a learning centre (main floor) and lending library with some books and videos on FM and ME. Phone 604-875-5002.
Below is a list of some informative books and videos that are available on ME and/or FM.
A Girl Behind Dark Glasses
Jessica Taylor-Bearman, Hashtag Press, 2018. ISBN 9781999805357
This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight
Understanding Post-Traumatic Fibromyalgia
Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 1996. ISBN 0-9646891-8-9
Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 2001. ISBN 1-890018-36-8 (See below)
Fibromyalgia for Dummies
Roland Straud 2002. John Wiley & Sons Canada. ISBN: 0764554417
The Fibromyalgia Supporter
Mark J. Pellegrino, M.D, Anadem Publishing, Inc., 1997. ISBN 1-890018-11-2
You can order any of the three books by Mark J. Pellegrino from Anadem Publishing, Inc. // Phone: 1-800-633-0055 www.anadem.com
Coping With Fibromyalgia Beth Ediger, Toronto, ON, LRH Publications, 1991.
The Fibromyalgia Advocate: Getting the Support You Need to Cope with Fibromyalgia and Myofascial Pain Syndrome
Devin J. Starlanyl, M.D., 1998. ISBN 1-57224-121-7
Fibromyalgia & Chronic Myofascial Pain Syndrome: A Survival Manual (Second Edition)
Devin Starlanyl and Mary Ellen Copeland, 2001. ISBN: 1-57224-238-8
Beth Ediger, Fredericton, NB, LRH Publications, 1997.
These two booklets by Beth Ediger are no longer in print, but can sometimes be found.
All About Fibromyalgia, An Essential Guide for Patients and Their Families
Daniel J. Wallace, M.D., and Janice Brock Wallace. Oxford University Press, 2003. ISBN: 0195149319
The Fibromyalgia Help Book: Practical Guide to Living Better with Fibromyalgia
Jenny Fransen, R.N. and I. Jon Russell, M.D., Ph.D. Smith House Press, 1996. ISBN: 0-9615221-4-3
The Fibromyalgia Syndrome: A Clinical Case Working Definition for Practitioners
I. John Russell, MD, PhD Editor. Co-published as Journal of Musculoskeletal Pain Vol. 11, Number 4, 2003. The Haworth Medical Press. ISBN: 0-7890-2574-4
From Fatigued to Fantastic
Jacob Teitelbaum, M.D., 2001. ISBN 1-58333-097-6 Treatment program for CFS and FM.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols
Originally published Journal of Chronic Fatigue Syndrome Vol. 11, Number 1, 2003. The Haworth Medical Press. ISBN: 0-7890-2207-9
Fibromyalgia and Muscle Pain: Your Self-Treatment guide
Leon Chaitow, Thorsons Publishers, 3rd edition, 2001. ISBN: 0007115024
Fibromyalgia: Simple Relief Through Movement
Stacie L. Bigelow, MA, John Wesley & Sons, Inc., New York, NY, 2000. ISBN: 0471348023
Chronic Fatigue Syndrome, Fibromyalgia and Other Invisible Illnesses: The Comprehensive Guide
Katrina Berne, 2002. ISBN 0-89793-280-3
Tired or Toxic? A Blueprint for Health
Sherry Rogers, M.D., 1990. ISBN 0-9618821-2-3
The first in a series of books by this environmental medicine specialist. Order from Prestige Publishing:
The Doctor’s Guide to Chronic Fatigue Syndrome – Understanding, Treating and Living with CFIDS
David S. Bell, M.D., 1995. Perseus Publishing. ISBN 0-201-62616-0
Alternative Medicine Guide to Chronic Fatigue, Fibromyalgia and Environmental Illness
Burton Goldberg, 1998. ISBN: 1-887299-11-4.
TMJ: Its Many Faces–Diagnosis of TMJ and Related Disorders, 2nd Edition
Wesley Shankland II, D.D.S., M.S., Ph.D., 1998. ISBN 1-890018-23-6
Order from Anadem Publishing, Inc.:
Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia
Dr. Alison Bested 2006. Cumberland House. ISBN: 1-5818246-5-3
The CFIDS and Fibromyalgia Self-Help Book (New Edition)
Dr. Bruce Campbell 2004. CSH Press, Palo Alto CA. ISBN: 0-9705267-1-7
This new edition is available for purchase for US$10.95 plus US$10 postage from:
Dr. Bruce Campbell
CFIDS Self-Help Program
777 San Antonio Road, #121
Palo Alto, CA 94330-4856
Alternatively, it can be ordered on-line at:
www.cfidsselfhelp.org. You can contact Dr. Campbell himself via email at:
Living Well With Chronic Fatigue Syndrome and Fibromyalgia
Mary J. Shomon 2004. HarperCollins Publishers Inc. ISBN: 0-06-052125-2
You Don’t LOOK Sick – Living Well with Invisible Chronic Illness
Joy H. Selak & Steven S. Overman, MD, MPH 2005. The Haworth Medical Press. ISBN: 0-7890-2449-7
Auto Accident Survivor’s Guide for British Columbia
Jill Franklin 2005. ISBN: 0-9736611-0-0
Available at local bookstores throughout BC. Call 1-800-667-3848 for the closest store. Order online at:
Fibromyalgia & Chronic Fatigue Syndrome – 7 Proven Steps to Less Pain & More Energy
Fred Friedberg, Ph.D. New Harbinger Publications Inc. 2006. ISBN 978-1-57224-459-7
In Praise of Slow – How a Worldwide Movement is Challenging the Cult of Speed
Carl Honore 2004. Random House of Canada. ISBN: 0-676-97572-0
Lisa Earle McLeod with JoAnn Swan Neely. Berkley Trade 2001. ISBN – 10: 039952715X; ISBN – 13: 9780399527159.
I Remember Me Video
Kim Snyder. The first nationally released film on ME.
You can purchase this film from:
Zeitgeist Films (in the USA)
Diagnosing and Treating Chronic Fatigue Syndrome
Dr. Sarah Myhill, January 2009, 26th edition. E-book available online at www.drmyhill.co.uk/cfs_book.pdf
Breaking Thru the Fibro Fog: Scientific Proof Fibromyalgia is Real *
Kenneth P. White, M.D. PhD. 2010. Wortley Road Books. Forward by Dr. Fred Friedberg PhD. Available online at www.wortleyroadbooks.com; currently on sale at $10 off the list price of $32.95 (15% of all proceeds are being donated to the American Fibromyalgia Syndrome Association to fund FM research).
Award-winning, Oscar-nominated Documentary on ME produced and directed by
Jennifer Brea that follows the lives and realities of Severe ME patients.
Can be purchased on itunes https://itunes.apple.com/ca/movie/unrest/id1265409535?
Can be purchased on Vimeo on demand https://vimeo.com/ondemand/unrest
Documentary produced by Ryan Prior, a journalist living with ME. Links to watch the film
on the website. http://www.forgottenplague.com
MEFM Society of BC
MEFM Myalgic Encephalomyelitis and Fibromyalgia Society of BC
Box 462 – 916 West Broadway, Vancouver, BC, V5Z 1K7
Phone: 604-878-7707 // BC toll free: 1-888-353-6322
Annual membership $25.00.
FM-CFS Canada, 310-1500 Bank Street Ottawa, Ontario K1H 1B8
Phone toll free: 1-877-437-HOPE (4673)
National ME/FM Action Network
512 – 33 Banner Road, Nepean, ON K2H 8V7
Phone: 1-613-829-6667 // E-mail: email@example.com
Annual membership $25.00 includes Quest quarterly newsletter.
Available for purchase: The Canada Pension Plan Disability Benefits Guidelines, $7.00
Legal Disability Manual, $60.00 (includes CPP Disability Benefits Guidelines
Legal Information Websites
For court decisions in BC, search on:
This site provides free access to scientific articles on ME/CFS that have recently appeared in well-known medical journals.
“Chronic Fatigue Unmasked”
Dr. Gerald E. Poesnecker’s website contains extensive excerpts from his book, Chronic Fatigue Unmasked 2000.
A website run by a for-profit company that sells nutritional supplements, provides a wealth of CFS/FM resources, with a focus on research and treatment news. You can subscribe to an online newsletter.
Invisible Disabilities Association of Canada
For people with CFS, FM, environmental sensitivities and other disabilities.
Chronic Fatigue Syndrome & Fibromyalgia Information Exchange Forum (Co-Cure)
An extensive website with a variety of CFS/FM information. You can subscribe to its online mailing list.
World Health Online
A for-profit website that offers information on a variety of conditions (including CFS/FM), with a focus on alternative medicine.
Web MD Message Board
Kim Jones, RN., Ph.D., F.N.P. of Portland, OR, responds to questions about new therapies for ME/FM.
FM-CFS Canada - Compassion in Action
John Ernst is the executive director for FM-CFS Canada in Ottawa, Ontario.
Canadian Lyme Disease Foundation