Access to knowledgeable, well-informed healthcare providers remains one of the biggest challenges facing people living with ME/CFS, Long COVID and Fibromyalgia. Our own survey data backs this up starkly: most patients report that healthcare workers have little, outdated, or incorrect knowledge of these conditions, and "more knowledgeable providers" is patients' top priority for better care. On the clinician side, past BC surveys have found that most physicians feel only moderately confident,...

The BC Ministry of Health is inviting British Columbians to take part in a new Patient Experience Survey. In response to an earlier version of this survey, the ME|FM Society of BC prepared a written submission grounded in our own research: the BC Patient Experience Survey Report (October 2025), conducted in partnership with the National ME Action Network, BC Lyme Society, and ME Victoria Association. It's the largest survey of ME/CFS, fibromyalgia, Long COVID and Lyme patient experiences ever...

We're inviting our community, and yours, to join the #Plank4ME challenge in support of the Open Medicine Foundation's current research campaign. How it works: Take a photo or record a short video (no more than 15 seconds and 100 MB) of yourself planking in support of Myalgic Encephalomyelitis research. You can see a video example here. If a plank isn't accessible to you, that's completely fine. You're welcome to lie down on the floor, a couch, or a bed instead, and simply say you're...