ME and FM are diseases which can turn lives upside down. With so much stigma, ignorance, and misinformation around the diseases, it can be difficult to deal with the changes and challenges they bring. We're here to provide emotional support for patients, families and caregivers.
Here you will find a variety of online resources and contact numbers for people and organizations that can offer help. Feel free to contact us at any time if you have any questions.
You can reach us for support in the following ways:
Society Support Services
Support Phone Line - Our phone line is managed by volunteers who respond to calls within 48h. (Note: this is not an emergency support service but an emotional support service for non-urgent requests for support and information.)
Support Forum - We created the forum to provide a space for British Columbia ME and FM patients and caregivers to discuss issues from a local perspective. We are hoping that over time this forum will be a great resource for finding health care professionals, services, events, and fellow patients in your neighbourhood. Some forum categories can be viewed without creating an account and joining the forum. In order to provide privacy for more personal discussions, the forum requires you to create an account and login on the forum page to participate in all discussions.
Crisis Centre BC - The hardships experienced by ME and FM patients are often overwhelming. At the society, we receive many calls and emails every years from people who are desperate and feel they have nowhere to turn and no options. When we feel someone is in a crisis, we refer them to the Crisis Centre of BC. This is an excellent service, with volunteers trained to deal with people whose emotional and/or physical situations are dire. If you feel you are in crisis, please reach out to this excellent service. They are available 24h/day and 7 days/week.
While the housing crisis in British Columbia and other parts of the country dominates the news, it is a terrifying reality for the most vulnerable members of our community, those affected by disabilities, age, unemployment or abuse. BC Housing has informed us that there are 16,000 applicants waiting on their Housing Registry. With public housing stock decreasing while rents skyrocket, the number of applicants has been growing, outstripping supply. The registry only places about 200 applicants a month. Doing the math, at the current rate of placement applicants can expect to wait over six years for housing, with some having waited over 15 years.
The advice they give is to get on the BC Housing list as soon as you know you are in need, and check it regularly to ensure that it hasn't been lost or cancelled. BC Housing DOES NOT provide emergency housing. They suggest calling 211 for emergency or transition housing in Vancouver and Burnaby. Alternatively, go to the BC Registry Housing listing, and go to Section 2 for the area you choose to do your search. There you will find the listing for low income housing which does not use the services of BC Housing to find tenants.