Symptom management and referral
Summary: CDC - Treatment of ME/CFS (2021)
ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS
The guidebook can be viewed online, downloaded, or printed – in color or black and white.
This guidebook is designed for patients, for those allies supporting patients and for medical providers. This guidebook aims to help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met. It offers guidance in carrying out everyday living activities that support energy conservation with ME/CFS. The tools provided are divided into chapters, to be used individually or the guidebook as a whole.
Harm of exercise in ME/CFS
Workwell Foundation's letter to healthcare providers: Opposition to Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) for ME/CFS
Provincial referral support*
Complex Chronic Disease Program (BC Women’s and Children’s Hospital, Vancouver)
*Please consider waitlists are lengthy for patients to be seen. Physician to physician consultations may be available to support family physicians.
Consider specialist referrals for co-morbities
Mast Cell Activation Syndrome (MCAS)
Gastrointestinal symptoms, IBS
Consider referrals for in-home visits for supportive care
OT home assessment/support
In-home lab services