Symptom management and referral
Caring for patients with ME/CFS
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Bateman Horne Centre: Medical considerations when treating urgently ill patients with underlying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Summary: CDC - Treatment of ME/CFS (2021)
Summary: Low Dose Naltrexone (LDN) in ME/CFS (2019)
Summary: Assessing Post Exertional Malaise in ME/CFS (2019)
Summary: Abnormal cardiac changes in ME/CFS not due to deconditioning (2018)
Summary: Dysfunctional ANS in ME/CFS (2018)
ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS
The guidebook can be viewed online, downloaded, or printed – in color or black and white.
This guidebook is designed for patients, for those allies supporting patients and for medical providers. This guidebook aims to help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met. It offers guidance in carrying out everyday living activities that support energy conservation with ME/CFS. The tools provided are divided into chapters, to be used individually or the guidebook as a whole.
Harm of exercise in ME/CFS
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Workwell Foundation's letter to healthcare providers: Opposition to Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) for ME/CFS
Editorial: Studies and surveys implicate potential iatrogenic harm of CBT and GET for ME/CFS patients
Pacing management
Pacing and Management Guide for ME/CFS
Pacing Tutorial (aimed for patients, but quick, help intro for clinicians to support patients)
ME Action's Pacing and Management Guide for Paediatric ME/CFS and Long COVID
Provincial referral support*
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Complex Chronic Disease Program (BC Women’s and Children’s Hospital, Vancouver)
*Please consider waitlists are lengthy for patients to be seen. Physician to physician consultations may be available to support family physicians.
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The CCDP also publishes a Community and Financial Resources in BC Guide (updated June 2022).
Consider specialist referrals for co-morbities
POTS/Orthostatic Intolerance
Mast Cell Activation Syndrome (MCAS)
Gastrointestinal symptoms, IBS
Consider referrals for in-home visits
OT home assessment/support
In-home lab services