2023 May Awareness event - What's new in ME research?
Friday, May 12, 2 - 3:30 pm.
May 12 is ME/CFS International Awareness Day.
On this day, across the world, advocates join to increase much-needed awareness, education, and research funding for Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS).
ME/CFS is a devastating, chronic, multi-system disease. Approximately 600,000 individuals in Canada and 77,000 British Columbians suffer from ME. It affects children, adolescents, and adults of all ages. ME is triggered by viral infections in the majority of patients. Scientific inquiry indicates many with Long COVID now have ME. The symptoms are very similar. This adds significant numbers of new ME patients requiring care.
The ME/FM Society of BC is continuously seeking to raise awareness, education, and support for those living with ME and FM. Every day is May 12th for us!
This year we aim to highlight two Canadian leaders driving to increase scientific knowledge of ME. We hope you join us for a two-part presentation and discussion with Dr. Xiaowei Song and Ms Sabrina Poirier.
We thank the generous support from the Wickerson Family Foundation to host our webinars.
This webinar will be live and not recorded.
Hope or Harm?
With Sabrina Poirier
Research can bring about positive changes but it can also cause harm if done poorly or without the knowledge and lived experience of patient partners. The ME community has experienced both sides of research and have learned valuable lessons that will help us move a robust research agenda forward. Sabrina will present on the need for patient engagement in Canadian research.
Read more about Sabrina here.
Using multimodal magnetic resonance imaging and spectroscopy (MRI/MRS) to detect brain functional and metabolic changes underlying possible neuroinflammation in ME
With Dr. Xiaowei Song
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterized by post-exertional malaise and has specific clinical features. The disease remains an enigma due to a lack of pathophysiological causal explanation. Recent research has suggested several potential mechanisms. We took a patient-oriented approach to understand the feasibility of detecting brain functional and metabolic changes underlying possible neuroinflammation in ME using multimodal magnetic resonance imaging and spectroscopy (MRI/MRS). This presentation overviews the project development and progress, shows the preliminary study findings, and discusses the significant roles of patient partners in the research project.
Read more about Dr. Song here.
ME/FM Society of BC Webinar in partnership with the Wickerson Foundation - CCDP Research Update
Pre-recorded in August, 2022, Dr. Luis Nacul, Clinical, and Research Director at the CCDP, reviews the research priorities of the CCDP, introduces the research staff, and lists their collaborations. The majority of this presentation details five current projects and the related results. The session ends with a few community questions asked of Dr. Nacul.
Medical Education Webinar: Myalgic Encephalomyelitis - Diagnosis, Management and Current Research
An educational webinar featuring Dr. Nina Muirhead, Dr. Lucinda Bateman, Dr. Luis Nacul and Patient Voice Hilary Robertson. This webinar was developed in partnership by the ME|FM Society of BC and ICanCME to develop a webinar for the Federation of Medical Women in Canada. It was recorded live on September 22, 2021.
The ME|FM Society of BC serves as a resource for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and related illnesses. The information in this information package and on our website is not a substitute for professional medical advice. Please consult with your physician or other healthcare provider in matters pertaining to your medical care.
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