ME: What to take to your doctor & health care provider


  • Print and take this letter from the Workwell Foundation regarding cautions around exercise for ME patients.:

     ME/CFS GET Letter to Health Care Providers​

- The most thorough diagnostic criteria for ME is Myalgic Encephalomyelitis – Adult & Paediatric: International Consensus Primer for Medical Practitioners, known as the ICC (international Consensus Criteria). It is mostly used by researchers, however, there are some ME specialist physicians who prefer this criteria.

- The most widely accepted is the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners.  An Overview of the Consensus Document,  known as the CCC (Canadian Consensus Criteria)

- The simplest is the Institute of Medicine's (IOM) ME/CFS Clinicians’ Guide, which is part of the IOM's very comprehensive report Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. This  criteria suggests a  new name for the illness, Systemic Exertion Intolerance Disease (SEID), which is confusing, and has not been adopted. These IOM criteria place the symptom of post exertional malaise (PEM) at the center of the diagnosis. As this criteria captures a broader ME/CFS cohort (including ME patients)  than those cited above, the IOM criteria is seen by many as a screening, rather than diagnosing criteria.

- For children and adolescents: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer (2017) Rowe, P. C., Underhill, R. A., Friedman, K. J., Gurwitt, A., Medow, M. S., Schwartz, M. S., . . . Rowe, K. S. Frontiers in Pediatrics, 5(121). doi: 10.3389/fped.2017.00121

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