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Caregiver resources

A caregiver’s story

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My name is Jana and I provided care to a person with Myalgic Encephalomyelitis (pwME) for several years. My pwME was my husband and the journey from partner to caregiver wasn't easy. I had to learn new ways to cope with shifting responsibilities and priorities, while dealing with what seemed like the loss of a relationship. 

 

One of the first things anyone said to me when they found out that I cared for someone who was chronically ill and bed-bound, whether they were a health care provider, friend, stranger, even my own husband, was that self-care is important. But that is often easier said than done. So I had to find resources that could help me manage it all better. 

I'd like to say that I figured it out but I didn't. However, I did find some useful resources that are shared here. Everything has been collected based on how it helped me, or other caregivers like me, and I hope you find some of it helpful, too.This page is here to try to help you in your caregiving. Some of the references are to ME-specific caregiver resources or information but many are not. It’s important to note that none of these links are endorsed by the ME|FM Society of BC

 

If you have questions, recommendations for sources for this page, or you would like to share your own story, please contact support@mefm.bc.ca.

ME caregiving resources

Many caregivers also find books, websites, blogs and podcasts about living with ME can also be helpful when trying to understand what it’s like to live with ME.

Non-ME caregiving resources

Family Caregivers of BC

Supports British Columbians who provide physical and/or emotional care to others.

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Caring.com

 

Geared to people caring for the elderly; some less specific resources are available.

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Doctors of BC

 

List of community resources for family caregivers, including financial aid.

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The Caregiver Space

Where you can ask questions and share experiences about being a caregiver.

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Other caregivers have found books, podcasts and blogs on the following topics helpful:

  • General caregiving

  • Caregiver burnout

  • Meditation and mindfulness for caregivers

  • Setting boundaries

  • Relaxation and stress relief techniques

You may also want to consider:

  • Some form of regular physical activity, acupuncture, massage

       therapy, etc.

  • Guided breathing and meditation

  • Apps that help with time management, organization, health and wellbeing

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