Research and other patient partner opportunities
Introduction
Patient partners are those with lived experience, caregivers and/or family who collaborate with researchers to provide their unique perspectives through the research process.
The inclusion of patient partners in research results in the following (see here):
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Improved patient safety
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Better health outcomes
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Reduced health care costs
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Better decision-making.
If you want to share your patient experience, below is a list of projects currently seeking patient partners. When choosing a project, consider the following:
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Do you fit the listed criteria?
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Do you have the requisite time and energy to commit fully to the project?
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Can you participate from home or will the project require your attendance elsewhere?
Opportunities
Research on Long COVID, Gait and Balance
The RELEARN (REhabilitation of the Lower Extremities AfteR Neurological Injury) Lab at the University of Toronto is recruiting participants with Long COVID for a study on walking and balance. This study defines Long COVID as someone with a history of confirmed COVID infection and reporting symptoms 3 months after the onset, and lasting a minimum of 2 months that can’t be explained by other diagnoses.
Target Participants: People with lived experience
Learn more here.
Research on Long COVID in Diverse Communities
Researchers are seeking adults living with Long COVID to participate in a study exploring its impact on health, daily life, and recovery within diverse communities. Participants will take part in an online focus group or individual interview (60–90 minutes) and receive a $50 gift card in appreciation. The study aims to identify barriers, supports, and community-driven solutions to improve well-being and health outcomes for people living with Long COVID.
If you are interested in participating or if you have any questions, please contact the coordinator via email covidstudy@ottawaheart.ca or at (613) 6967000 x 18949.
Myalgic Encephalomyelitis / Chronic Fatigue
Syndrome (ME/CFS) affects on schooling and the health-related quality of life of young people
living with ME/CFS in Canada
To do this we need your help. We are seeking Canadian residents, aged 14 – 29, who fit into one of the following three groups:
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Are in high school, college or university and have ME/CFS or unexplained fatigue.
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Have had to withdraw from high school, college or university due to ME/CFS or unexplained fatigue.
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Are in high school, college or university and are without health conditions that cause problems with fatigue/energy, flu-like symptoms, or missed time at school (control group).