Research and other patient partner opportunities
Introduction
Patient partners are those with lived experience, caregivers and/or family who collaborate with researchers to provide their unique perspectives through the research process.
​
The inclusion of patient partners in research results in the following (see here):
​
-
Improved patient safety
-
Better health outcomes
-
Reduced health care costs
-
Better decision-making.
If you want to share your patient experience, below is a list of projects currently seeking patient partners. When choosing a project, consider the following:
​
-
Do you fit the listed criteria?
-
Do you have the requisite time and energy to commit fully to the project?
-
Can you participate from home or will the project require your attendance elsewhere?​
​
​
Opportunities
Empowering Mobility:
Exploring the Decision-Making Process of Older Adults in Adopting Power Assist Devices
This project explores the perspectives of older adult manual wheelchair users on power assist devices (PADs) and their decision-making process.
You are 50 or older, currently use a manual wheelchair, can communicate in English, and can give informed consent. Application deadline is May 31, 2025.
​
More information here.
Visible:
The pacing app for people with ME/CFS and Long Covid
Using the "Visible" app, participate in a study focussed on the relationship between environment/weather and complex illness.
​
Research studies, in partnership with Imperial College London, are ongoing.
​
More information here.
Patient Experience within the BC Health Care System with a Focus on Virtual Care
A project that aims to connect with patient partners to better understand their experiences of the health care system in all settings (primary care, hospitals etc.) including any interactions with virtual care.
​
Open to participants across BC.
Application deadline is April 22, 2025.
​
More information here.
Improving Equity in Healthcare Through Hospital Safety Monitoring Systems
The overarching goal of our research is to help Canadian health systems integrate equity in incident reporting and patient concerns (complaints) systems.
​
Open to participants across Canada.
Application deadline is April 30, 2025.
​
More information here.
UBC Research Study Recruitment: Patient and Provider Experience of Virtual Care in Equity-Deserving Populations: Rooting for a Virtuous Virtual Care
Are you a health care service user with experience in Virtual Care? Share your experiences and contribute to meaningful research!
​
Open to participants across Canada.
Application deadline is September 30, 2025.
​
More information here.
How can neuroscience be applied to understand brain health and day-to-day life?
Thinking Like a Neuroscientist Course at UBC — Seeking Subject Matter Experts with Lived Experience.
​Location: Filming will be on campus at UBC
​
Payment: $40/hr
​
Time commitment: about half a day to one day of filming plus a bit of coordinating over email or virtual meetings beforehand. Filming will likely occur in the summer, exact timing is to be determined.
​
Information Session
An online information session for people interested in being an SME will occur on April 14, 2025, at 10am PST. More information sessions will be scheduled for those that cannot attend. Please contact Karina at karina.thiessen@ubc.ca if you would like to attend an information session.
​
