We have found two new helpful resources to share this week:
1) ME/CFS Survival Guidebook: The Art of Living with ME/CFS
2) Facets of ME: A launch of a new education series of the multiple aspects of living
and managing ME/CFS
The guidebook can be viewed online, downloaded, or printed – in color or black and
white. This guidebook is designed for patients, for those allies supporting patients and for medical providers.
This guidebook aims to help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met. It offers guidance in carrying out everyday living activities that support energy conservation with ME/CFS. The tools provided are divided into chapters, to be use individually or the guidebook as a whole.
The Bateman Horne Center (BHC) recommend the content and concepts can be applied to FM, Long COVID, orthostatic intolerance, and MECFS.
We have added this resource to both our patient and our provider resource sections:
Thank you to the Bateman Horne Center for developing this helpful, comprehensive
2) Facets of ME
ME Action (USA) has launched a new education series on ME/CFS. With text
and audio options, this monthly series will take patients (and allies) though various topics related to this illness. The first installment is on PEM, or post-exertional malaise, which is the hallmark symptom of ME/CFS.
Do you have a favorite resource? If so, please share it with our Community Engagement Team (email@example.com).