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Toolkit

Click on each document link to download, fill, save and/or print 

Use this checklist, which covers before, during and after your appointment, to make sure you are prepared and don’t forget anything important.

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For each symptom, summarize dates/times/durations and severity. Note triggers, what makes it better/worse, time of day it is worst, and what actions/treatments you have tried.

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For some people, this detailed daily symptom tracker can: 

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Print and take with you to your appointment. Identifies your main concerns and questions to ask. Provides a way to record your conversation with the doctor and follow-up items.

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Track when you start and stop treatments, how they worked, and if they had side effects. Some doctors may also like this level of detail, while some only want a simple list of current treatments and doses.

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Having trouble knowing what activities, and how much of each, trigger worsening symptoms for you? Is your PEM hard to predict because it happens hours or days after activity? Using a detailed daily activity tracker for a while can help.

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