The information below was initially distributed on October 10, 2025. Today is a significant day. After months of work and 1,045 of you courageously sharing your experiences, we're releasing the BC ME/CFS, Fibromyalgia, Lyme & Long COVID Survey results. The numbers are both shocking and deeply validating.   You Are Not Alone. You Are Not Imagining This. 93% of you had negative healthcare experiences. Read that again. This isn't a few "difficult" patients. This isn't an isolate

The following information was distributed on June 19, 2025. We have some important advocacy news to share with you. The society recently had the opportunity to speak to the Select Standing Committee on Finance and Government Services regarding the 2026 provincial budget; on behalf of our community, we presented three key recommendations that could transform care for our community in British Columbia.   Building on Past Success Our advocacy efforts have achieved real results b

Emergency care is meant to be a safety net—a place to turn when symptoms escalate or a crisis hits. But for individuals living with ME , FM, or Long-COVID , visits to the ER can often feel more like an uphill battle than a lifeline. This post explores the unique challenges our community faces in emergency settings, shares lived experiences from across British Columbia, and offers practical tools to help prepare for and navigate these often difficult situations. Ongoing Strugg

For an audio version of this article, click on the red SoundCloud arrow. CityNews Vancouver ME/FM Society of BC My MLA and ME program Full article Recently, the ME/FM Society of BC was invited to participate in a local local news story from CityNews Vancouver highlighting the challenge to find care for ME in BC. This news article highlights the challenges that ME patients have in finding a knowledgeable doctor to support their care. The article also highlights the stigma e

For an audio version of this article, click on the red SoundCloud arrow. Budget-2023-Consultation-Report.pdf (leg.bc.ca) Get involved | MEFM SOCIETY OF BC . To our ME community, We continually work at advocacy. Advocacy takes time, commitment and strategy. Today, we are thrilled to share another win! Every year, the BC Government hosts a province wide, public consultation to seek views on priorities for the next provincial budget. The ME|FM Society of BC has an active and mu

For an audio version of this article, click on the red SoundCloud arrow on the right. Applicable links My MLA and ME program L etter to Minister Dix and Ministry of Health staff We continue to advocate for all British Columbians living with ME in our ongoing communications with sitting MLAs, Health Minister Dix and Ministry of Health staff. In addition to our successful and ongoing My MLA and ME program, we also communicate our concerns in other ways. As demonstrated in

To our ME community, We are elated to share with you the exciting progress we have made in our advocacy efforts - progress with our government that we know has been long awaited by those affected by ME! We are extremely proud of the work the Society's Advocacy Committee and our wonderful “MLA and ME Advocates” have undertaken this past year. MLA Relationships are being made and we now have 40 MLAs partnered with one of our ME Advocates. Plus, we recently experienced milestone