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One in Twenty-Nine: The Staggering Reach of ME/CFS
Most people have never heard of myalgic encephalomyelitis/chronic fatigue syndrome. Fewer still understand how many lives it quietly consumes. A closer look at the numbers reveals a disease burden that is not just significant, it is extraordinary. What Is Prevalence, and Why Does It Matter? When researchers talk about disease burden, one of the most fundamental questions they ask is: how many people does this affect? Prevalence is the measure of how many people are currently
info519251
Apr 283 min read
Your Donation Just Got Three Times More Powerful
This May, your support for the ME/CFS community goes further than ever. From May 1 to June 1, 2026, Opera Mariposa and the ME | FM Society of BC are running a triple-match fundraising campaign — meaning every dollar you donate is matched to deliver three times the impact. Here's how it works: generous sponsors have committed to tripling every donation received, up to a total of $3,000 in contributions. If we hit that goal, the Society receives $9,000 in total, a $6,000 boost
info519251
Apr 271 min read
Navigating the Maze: How the Barrier-Free Benefits Program Is Changing Lives
For many Canadians living with a disability, the path to financial support is anything but straightforward. Complex forms, confusing eligibility rules, and mountains of paperwork can turn what should be a lifeline into an exhausting ordeal. Inclusion Canada is working to change that one appointment at a time. The Problem with Applying for Disability Benefits Canada offers several significant financial programs for people with disabilities: the Disability Tax Credit (DTC), the
info519251
Apr 123 min read
Long COVID: Why Clarity Matters More Than Ever
Recently, our Society was involved in reviewing a Long COVID research protocol. There were several concerns. But one stood out. The study largely treated Long COVID as a single illness, with a single protocol design for all participants, implicitly assuming that all Long COVID patients have similar symptoms, risks, and responses to treatment. That assumption is the problem. Because what we call “Long COVID” is not one condition. It is a catch-all term for a few very different
ME|FM Society of BC
Mar 263 min read
Solve M.E. Research Announcement
Two upcoming research projects, Effect of Semaglutide on ME/CFS Symptoms and Discovery of Target Antigens for Dysfunctional T Cells in ME/CFS and Long COVID , bring hope for improved diagnosis and targeted treatments. Read more about these projects here .
ME|FM Society of BC
Mar 31 min read
Science Is Finally Validating Your Reality
The information below was initially shared on January 9, 2026. In November, researchers at the University of East Anglia announced a blood test that diagnoses ME/CFS with 96% accuracy . Let that sink in! For years, many of you have been told your illness is "all in your head." This test proves what you already knew: ME/CFS has a clear biological signature. It's measurable. It's real. "For the first time, we have a simple blood test that can reliably identify ME/CFS — potent
ME|FM Society of BC
Mar 21 min read
Hope on the Horizon: Recent Research Breakthroughs
The information below was initiallly shared on November 11, 2025. Long COVID : Scientists have identified the first potential biomarker for Long COVID by detecting SARS-CoV-2 protein fragments in tiny cellular packages in the blood of affected patients Theanalyticalscientist ScienceDaily . Researchers in Japan have also discovered that Long COVID brain fog is connected to measurable changes in AMPA receptors in the brain, and their imaging technique can distinguish Long COVID
ME|FM Society of BC
Mar 21 min read
From Advocacy to Action
The information below was initially distributed on October 10, 2025. Today is a significant day. After months of work and 1,045 of you courageously sharing your experiences, we're releasing the BC ME/CFS, Fibromyalgia, Lyme & Long COVID Survey results. The numbers are both shocking and deeply validating. You Are Not Alone. You Are Not Imagining This. 93% of you had negative healthcare experiences. Read that again. This isn't a few "difficult" patients. This isn't an isolate
ME|FM Society of BC
Mar 23 min read
When crisis becomes opportunity
The information below was initially distributed on August 14, 2025. Recent MSP billing compliance changes are set to disrupt care for thousands of patients with ME/CFS, Fibromyalgia, and Long COVID—many of whom were already struggling in a broken healthcare system. With no transition plan in place, approximately 5,000 people face immediate loss of the limited care they had. For a community where 98.5% already have no access to specialized care, this isn't just a service disru
ME|FM Society of BC
Mar 24 min read
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