The information below was initially distributed on August 14, 2025. Recent MSP billing compliance changes are set to disrupt care for thousands of patients with ME/CFS, Fibromyalgia, and Long COVID—many of whom were already struggling in a broken healthcare system. With no transition plan in place, approximately 5,000 people face immediate loss of the limited care they had. For a community where 98.5% already have no access to specialized care, this isn't just a service disru

The following information was distributed on June 19, 2025. We have some important advocacy news to share with you. The society recently had the opportunity to speak to the Select Standing Committee on Finance and Government Services regarding the 2026 provincial budget; on behalf of our community, we presented three key recommendations that could transform care for our community in British Columbia.   Building on Past Success Our advocacy efforts have achieved real results b

ME|FM Society of BC Director, Sophie Harrison, advocates for those with Long COVID. Watch her March 2025 interview on CTV News as she discusses her experiences with this disease, its connection to Myalgic Encephalomyelitis and the lack of adequate knowledge and care.

Professional Education & Clinical Practice Tools Policy Brief - Community Edition

The ME|FM Society of BC expresses profound disappointment with the 2025 BC Budget’s continued neglect of over 87,000 British Columbians living with Myalgic Encephalomyelitis (ME), 136,000 with FM and 118,000+ for those living with ME post COVID.  Despite years of advocacy and explicit recommendations from the Select Standing Committee on Finance and Government Services, this budget ignores the urgent needs of a community facing systemic healthcare barriers, stigma, and a loom

The ME|FM Society is revamping the My MLA & ME program for the new Legislative session – and you’re invited to be a part of it . People with myalgic encephalomyelitis know too well what it is to live with a misunderstood disease. From gaslighting to lack of awareness, we are practiced at advocating for ourselves in medical settings. But what does it look like to bring those advocacy skills to the political realm?  Since 2020, the Society has run its My MLA & ME campaign, supp

The group DoNoHarmBC is supporting a package of budget recommendations that include funding for services and care for people with ME and other chronic illnesses. More specifically, this local campaign supports the 2024 BC Report on the Budget Recommendation #80 (to improve services for ME patients) and Recommendation #76 (to fund clinics and care hubs for chronic illnesses), including a call for specific provisions for Long-COVID. If you have interest in supporting these

We have great news to share! This year marks the third consecutive year to have an ME specific recommendation placed in the Provincial Government’s Budget Consultation report! This is a community win! On August 3rd, 2023, the Select Standing Committee on Finance and Government Services released its Report on the Budget 2024 Consultation . This report is the result of an annual public consultation process which we know many of you participated in. A clear recommendation fo

For an audio version of this article, click on the red SoundCloud arrow. CityNews Vancouver ME/FM Society of BC My MLA and ME program Full article Recently, the ME/FM Society of BC was invited to participate in a local local news story from CityNews Vancouver highlighting the challenge to find care for ME in BC. This news article highlights the challenges that ME patients have in finding a knowledgeable doctor to support their care. The article also highlights the stigma e

For an audio version of this article, click on the red SoundCloud arrow. Budget-2023-Consultation-Report.pdf (leg.bc.ca) Get involved | MEFM SOCIETY OF BC . To our ME community, We continually work at advocacy. Advocacy takes time, commitment and strategy. Today, we are thrilled to share another win! Every year, the BC Government hosts a province wide, public consultation to seek views on priorities for the next provincial budget. The ME|FM Society of BC has an active and mu

For an audio version of this article, click on the red SoundCloud arrow on the right. Applicable links My MLA and ME program L etter to Minister Dix and Ministry of Health staff We continue to advocate for all British Columbians living with ME in our ongoing communications with sitting MLAs, Health Minister Dix and Ministry of Health staff. In addition to our successful and ongoing My MLA and ME program, we also communicate our concerns in other ways. As demonstrated in

For an audio recording of this article, click the SoundCloud link arrow. Summary notes of the May 12 webinar Accompanying survey Examining the Unmet Needs of British Columbians living with Myalgic Encephalomyelitis On May 12, 2022, in recognition of International ME Awareness Day, the ME|FM Society of BC was pleased to host a virtual event: Sounds Like ME - a community conversation. During the event, Society Co-chair Hilary Robertson provided an update on Society work and

To our ME community, We are elated to share with you the exciting progress we have made in our advocacy efforts - progress with our government that we know has been long awaited by those affected by ME! We are extremely proud of the work the Society's Advocacy Committee and our wonderful “MLA and ME Advocates” have undertaken this past year. MLA Relationships are being made and we now have 40 MLAs partnered with one of our ME Advocates. Plus, we recently experienced milestone