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From Advocacy to Action
The information below was initially distributed on October 10, 2025. Today is a significant day. After months of work and 1,045 of you courageously sharing your experiences, we're releasing the BC ME/CFS, Fibromyalgia, Lyme & Long COVID Survey results. The numbers are both shocking and deeply validating. You Are Not Alone. You Are Not Imagining This. 93% of you had negative healthcare experiences. Read that again. This isn't a few "difficult" patients. This isn't an isolate

ME|FM Society of BC
Mar 23 min read


When crisis becomes opportunity
The information below was initially distributed on August 14, 2025. Recent MSP billing compliance changes are set to disrupt care for thousands of patients with ME/CFS, Fibromyalgia, and Long COVID—many of whom were already struggling in a broken healthcare system. With no transition plan in place, approximately 5,000 people face immediate loss of the limited care they had. For a community where 98.5% already have no access to specialized care, this isn't just a service disru

ME|FM Society of BC
Mar 24 min read


BC Budget Advocacy Update
The following information was distributed on June 19, 2025. We have some important advocacy news to share with you. The society recently had the opportunity to speak to the Select Standing Committee on Finance and Government Services regarding the 2026 provincial budget; on behalf of our community, we presented three key recommendations that could transform care for our community in British Columbia. Building on Past Success Our advocacy efforts have achieved real results b

ME|FM Society of BC
Mar 22 min read


The Three Types of Long COVID
The following information was initially distributed on June 10, 2025. When people talk about "Long COVID," they're often referring to very different conditions. We want to help you understand that Long COVID actually represents three distinct outcomes of COVID-19 infection—and knowing the difference can be crucial for getting the right care and support. The Three Types of Long COVID 1. Organ and Tissue Damage: COVID-19 can cause lasting physical damage to organs like th

ME|FM Society of BC
Mar 22 min read


Canadian Dental Care Plan Now Open to All Eligible Canadians
The following information was first distributed in June of 2025 All remaining eligible Canadians aged 18 to 64 can now apply for the CDCP, with coverage starting as early as June 1, 2025. Canadian Dental Care Plan expands to include millions of new eligible Canadians - Canada.ca To qualify: be a Canadian resident with household income under $90,000, no existing dental insurance The Canadian Dental Care Plan - Canada.ca , and have filed your 2024 tax return. The plan covers

ME|FM Society of BC
Mar 21 min read


Dispelling Myths: The Complex Causes and Evolving Treatments of ME/CFS and Long COVID
The following information was originally shared on March 13, 2025. Five years into the COVID-19 pandemic, millions continue to grapple with Long COVID and ME/CFS—conditions plagued by misinformation that perpetuates stigma and inadequate care. In this double-feature installment of our Dispelling Myths series, we tackle two critical fronts: the biological roots of these illnesses and the dangers of outdated treatments. From viral triggers to harmful therapies, let’s separate f

ME|FM Society of BC
Mar 22 min read


Interview: Living with Long-Term COVID Symptoms
ME|FM Society of BC Director, Sophie Harrison, advocates for those with Long COVID. Watch her March 2025 interview on CTV News as she discusses her experiences with this disease, its connection to Myalgic Encephalomyelitis and the lack of adequate knowledge and care.

ME|FM Society of BC
Mar 21 min read


Transforming Healthcare for ME, Long-COVID, and Fibromyalgia
Professional Education & Clinical Practice Tools Policy Brief - Community Edition

ME|FM Society of BC
Jan 163 min read


Setting Summer Boundaries: Navigating Social Expectations with Chronic Illness
Summer's social calendar can feel like a minefield when you're managing chronic illness. Just as you've figured out how to keep your body cool, you're faced with a different kind of heat: social pressure. Family barbecues, outdoor weddings, patio dinners, and weekend festivals all come with the unspoken expectation that summer equals participation. But for people with ME/CFS, Fibromyalgia, or Long COVID, summer social events can trigger serious symptom flares that last for da

ME|FM Society of BC
Aug 6, 20255 min read
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