The information below was initially distributed on October 10, 2025. Today is a significant day. After months of work and 1,045 of you courageously sharing your experiences, we're releasing the BC ME/CFS, Fibromyalgia, Lyme & Long COVID Survey results. The numbers are both shocking and deeply validating.   You Are Not Alone. You Are Not Imagining This. 93% of you had negative healthcare experiences. Read that again. This isn't a few "difficult" patients. This isn't an isolate

The information below was initially distributed on August 14, 2025. Recent MSP billing compliance changes are set to disrupt care for thousands of patients with ME/CFS, Fibromyalgia, and Long COVID—many of whom were already struggling in a broken healthcare system. With no transition plan in place, approximately 5,000 people face immediate loss of the limited care they had. For a community where 98.5% already have no access to specialized care, this isn't just a service disru

ME|FM Society of BC Director, Sophie Harrison, advocates for those with Long COVID. Watch her March 2025 interview on CTV News as she discusses her experiences with this disease, its connection to Myalgic Encephalomyelitis and the lack of adequate knowledge and care.

Emergency care is meant to be a safety net—a place to turn when symptoms escalate or a crisis hits. But for individuals living with ME , FM, or Long-COVID , visits to the ER can often feel more like an uphill battle than a lifeline. This post explores the unique challenges our community faces in emergency settings, shares lived experiences from across British Columbia, and offers practical tools to help prepare for and navigate these often difficult situations. Ongoing Strugg

Good news! If you are a Person With Disabilities (PWD), with a valid Disability Tax Credit certificate, you will be able to apply to the Canadian Dental Care Plan (CDCP) using the online tool starting on June 27, 2024. For information on services covered, see here . In order to qualify, you must not have access to dental insurance have an adjusted family net income of less than $90,000 be a Canadian resident for tax purposes have filed your tax return in the previous year

Guardian columnist George Monbiot says in his opinion piece that "the outdated treatment of ME/CFS patients is a national scandal". Read this compelling article here . Trigger Warning: this article may bring up issues if you have had negative medical experiences.

BC Housing gives housing priority to applicants whose situation is urgent due to a health condition, domestic violence, or homelessness. BC Disability provides steps you can take if you have circumstances that make it especially pressing for you to get housing, including the use of the Supplemental Application Form . For more information, click here . "Navigating The System - BC Housing" is about halfway down the resulting webpage.

The ME|FM Society of BC is pleased to have partnered with the Disability Alliance of BC to prepare introductory information on applying for the Disability Tax Credit (DTC). This recording reviews eligibility criteria, helpful tips and what to expect, as well as examples for ME|FM. Also introduced is an online tool the Disability Alliance of BC developed to support completing the DTC form. The purpose of this recording is to provide introductory information for you to watch, r

For an audio version of this article, click on the red SoundCloud arrow. CityNews Vancouver ME/FM Society of BC My MLA and ME program Full article Recently, the ME/FM Society of BC was invited to participate in a local local news story from CityNews Vancouver highlighting the challenge to find care for ME in BC. This news article highlights the challenges that ME patients have in finding a knowledgeable doctor to support their care. The article also highlights the stigma e

For an audio version of this article, click on the red SoundCloud arrow. Introduction and diagnosis Symptom management and referral ME W ebinar for physicians Complex Chronic Diseases Program FAQ page In order to support you with your primary care provider, our website hosts information on Introduction and diagnosis and Symptom management and referral . This information is aimed at health care providers. Our Introduction and Diagnosis page contains links to The National

For an audio version of this article, click on the red SoundCloud arrow on the right. Applicable links My MLA and ME program L etter to Minister Dix and Ministry of Health staff We continue to advocate for all British Columbians living with ME in our ongoing communications with sitting MLAs, Health Minister Dix and Ministry of Health staff. In addition to our successful and ongoing My MLA and ME program, we also communicate our concerns in other ways. As demonstrated in

For an audio recording of this article, click the SoundCloud link arrow. Summary notes of the May 12 webinar Accompanying survey Examining the Unmet Needs of British Columbians living with Myalgic Encephalomyelitis On May 12, 2022, in recognition of International ME Awareness Day, the ME|FM Society of BC was pleased to host a virtual event: Sounds Like ME - a community conversation. During the event, Society Co-chair Hilary Robertson provided an update on Society work and

On November 29, 2021, we hosted a webinar for our members. Great to see so many of you together with us! This session presented findings of our preliminary project examining the unmet needs of British Columbians living with Myalgic Encephalomyelitis (ME). Full, short and graphic reports of this project: ME in BC: How the healthcare system for ME impacts clinicians and patients , is available at: Our research | MEFM SOCIETY OF BC . Watch the recording of this presentation belo