For many people living with ME and Long COVID, one of the hardest parts of the illness isn’t a symptom you can point to on a chart. It’s the silence of a world that has stopped including you, where contact fades, and life can become something you watch from a distance. These illnesses can shrink a person’s world. Post-exertional malaise, profound fatigue, and unpredictable energy strip away work, friendships, family gatherings, hobbies, and community. What’s left for many is

ME|FM Society of BC Director, Sophie Harrison, advocates for those with Long COVID. Watch her March 2025 interview on CTV News as she discusses her experiences with this disease, its connection to Myalgic Encephalomyelitis and the lack of adequate knowledge and care.

Living with ME, FM, or Long-COVID can feel isolating, but you don't have to navigate this journey alone. At the ME|FM Society of BC, we know that building a strong support network and accessing respite care are essential for managing these complex conditions. What Does a Support Network Look Like? Your support network is unique to you and might include: Family and friends who understand your condition Others living with ME, FM, or Long-COVID Healthcare providers familiar with