With an influx of new members lately, we are highlighting some frequently accessed information resources. For our long-standing members, please note, we review these resources and update them when we can. Today, we’ll highlight Pacing resources and FAQs . The ME |FM Society of BC Pacing resources web page includes an introduction to pacing, guides to assist you in limiting post-exertional malaise (PEM), and suggested tools with which to enable your plan. Our FAQs web pag

For an audio version of this article, click on the red SoundCloud arrow. Budget-2023-Consultation-Report.pdf (leg.bc.ca) Get involved | MEFM SOCIETY OF BC . To our ME community, We continually work at advocacy. Advocacy takes time, commitment and strategy. Today, we are thrilled to share another win! Every year, the BC Government hosts a province wide, public consultation to seek views on priorities for the next provincial budget. The ME|FM Society of BC has an active and mu

For an audio version of this article, click on the red SoundCloud arrow on the right. Applicable links My MLA and ME program L etter to Minister Dix and Ministry of Health staff We continue to advocate for all British Columbians living with ME in our ongoing communications with sitting MLAs, Health Minister Dix and Ministry of Health staff. In addition to our successful and ongoing My MLA and ME program, we also communicate our concerns in other ways. As demonstrated in

For an audio recording of this article, click the SoundCloud link arrow. Summary notes of the May 12 webinar Accompanying survey Examining the Unmet Needs of British Columbians living with Myalgic Encephalomyelitis On May 12, 2022, in recognition of International ME Awareness Day, the ME|FM Society of BC was pleased to host a virtual event: Sounds Like ME - a community conversation. During the event, Society Co-chair Hilary Robertson provided an update on Society work and

The connection between Long COVID and ME is evolving. In an effort to collect information on this developing topic, there is a new page to our website out today. ME and long covid resources - hosts a collection of published research on ME and Long COVID, collected accounts from researchers and experts, and a series of media pieces covering “long-haulers” developing ME/CFS. Please visit, read and share.

We are excited to announce a new page on our website! Pacing is one of the key management strategies for ME/CFS. Pacing Resources is a collection of high quality resources that support pacing education for people living with ME/CFS. This page lists educational materials such as, guides, tool suggestions and videos. We also encourage health care providers to learn more about pacing. We have highlighted pacing management on our Symptom management and referral (for health car

We have found two new helpful resources to share this week: 1) ME/CFS Survival Guidebook: The Art of Living with ME/CFS 2) Facets of ME: A launch of a new education series of the multiple aspects of living and managing ME/CFS 1) ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS The guidebook can be viewed online, downloaded, or printed – in color or black and white. This guidebook is designed for patients, for those allies supporting patients and for medical p

On November 29, 2021, we hosted a webinar for our members. Great to see so many of you together with us! This session presented findings of our preliminary project examining the unmet needs of British Columbians living with Myalgic Encephalomyelitis (ME). Full, short and graphic reports of this project: ME in BC: How the healthcare system for ME impacts clinicians and patients , is available at: Our research | MEFM SOCIETY OF BC . Watch the recording of this presentation belo

To our ME community, We are elated to share with you the exciting progress we have made in our advocacy efforts - progress with our government that we know has been long awaited by those affected by ME! We are extremely proud of the work the Society's Advocacy Committee and our wonderful “MLA and ME Advocates” have undertaken this past year. MLA Relationships are being made and we now have 40 MLAs partnered with one of our ME Advocates. Plus, we recently experienced milestone