The information below was initiallly shared on November 11, 2025. Long COVID : Scientists have identified the first potential biomarker for Long COVID by detecting SARS-CoV-2 protein fragments in tiny cellular packages in the blood of affected patients Theanalyticalscientist ScienceDaily . Researchers in Japan have also discovered that Long COVID brain fog is connected to measurable changes in AMPA receptors in the brain, and their imaging technique can distinguish Long COVID

The information below was initially distributed on October 10, 2025. Today is a significant day. After months of work and 1,045 of you courageously sharing your experiences, we're releasing the BC ME/CFS, Fibromyalgia, Lyme & Long COVID Survey results. The numbers are both shocking and deeply validating.   You Are Not Alone. You Are Not Imagining This. 93% of you had negative healthcare experiences. Read that again. This isn't a few "difficult" patients. This isn't an isolate

The information below was initially distributed on August 14, 2025. Recent MSP billing compliance changes are set to disrupt care for thousands of patients with ME/CFS, Fibromyalgia, and Long COVID—many of whom were already struggling in a broken healthcare system. With no transition plan in place, approximately 5,000 people face immediate loss of the limited care they had. For a community where 98.5% already have no access to specialized care, this isn't just a service disru

Professional Education & Clinical Practice Tools Policy Brief - Community Edition

Summer's social calendar can feel like a minefield when you're managing chronic illness. Just as you've figured out how to keep your body cool, you're faced with a different kind of heat: social pressure. Family barbecues, outdoor weddings, patio dinners, and weekend festivals all come with the unspoken expectation that summer equals participation. But for people with ME/CFS, Fibromyalgia, or Long COVID, summer social events can trigger serious symptom flares that last for da

Your home should be your sanctuary during summer heat, but for people living with chronic illness, it often becomes the frontline in managing symptoms and maintaining comfort. Simple, strategic modifications can transform your living space from a heat trap into a cooling refuge that supports your health and well-being throughout the summer months. The Science of Home Cooling Understanding how heat enters and moves through your home is the first step in creating effective cool

Heat doesn't just make you uncomfortable when you're living with chronic illness - it can trigger significant symptom flares that feel overwhelming and unpredictable. Understanding why this happens and having a plan for managing heat-triggered symptoms can be the difference between a challenging day and a medical emergency. Why Heat Triggers Symptom Flares When you have ME/CFS, Fibromyalgia, or Long COVID, your body's ability to regulate temperature is often compromised. This

Energy conservation isn't just helpful during summer with chronic illness - it's essential. When you're living with ME/CFS, Fibromyalgia, or Long COVID, heat doesn't just make you uncomfortable; it fundamentally changes how much energy you have available for everything else. Introducing Our "Navigating Summer" Toolkit Today marks a significant milestone - the official launch of our comprehensive "Navigating Summer" toolkit. This 42-page resource represents a community minded

Living with ME, FM, or Long-COVID can feel isolating, but you don't have to navigate this journey alone. At the ME|FM Society of BC, we know that building a strong support network and accessing respite care are essential for managing these complex conditions. What Does a Support Network Look Like? Your support network is unique to you and might include: Family and friends who understand your condition Others living with ME, FM, or Long-COVID Healthcare providers familiar with

At the ME|FM Society of BC, we know first-hand how challenging it can be to get a diagnosis and receive appropriate care for ME, FM, and Long-COVID. Many people in British Columbia face long delays—often years—before being diagnosed, partly because these illnesses are complex and not always well understood by healthcare providers. This post is designed to help you prepare for medical appointments, communicate effectively with your doctor, and advocate for the care you deserve

Emergency care is meant to be a safety net—a place to turn when symptoms escalate or a crisis hits. But for individuals living with ME , FM, or Long-COVID , visits to the ER can often feel more like an uphill battle than a lifeline. This post explores the unique challenges our community faces in emergency settings, shares lived experiences from across British Columbia, and offers practical tools to help prepare for and navigate these often difficult situations. Ongoing Strugg

The holidays are a time for joy, but for those of us with ME, FM and/or Long-COVID, they can also be a recipe for exhaustion and symptom flares. That's why we've created a free "Living with ME/Long-COVID" email series module dedicated to helping you navigate the holidays with energy to spare. Register for our "Living with ME/Long-COVID" email series now . Note if you have signed up for our email series, you do not need to sign up again. Need an energy boost?  Jam out to our